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首页> 外文期刊>Journal of nursing and healthcare of chronic illness >The influence of illness perspectives on self-management of chronic disease
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The influence of illness perspectives on self-management of chronic disease

机译：疾病观点对慢性病自我管理的影响

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Aim. To explore people's illness perspectives and related self-management of chronic disease.Background. Individuals' illness beliefs and perspectives have been suggested to influence their self-management behaviour. However, research that has examined the influence of illness perspectives on chronic disease self-management has been largely quantitative and has focused on selected elements of self-management. How individuals' illness perspectives influence their whole of self-management has not been investigated in depth.Method. The phenomenographic research study entailed 26 narrative interviews with Swedish adults with a variety of chronic diseases. Data were collected mostly during 2006.Results. The participants described two illness perspectives; being life-oriented meant to focus upon how to live a good life with disease, whereas a disease-oriented illness perspective emphasised the medical and physiological aspects of disease. The participants attested to one of the two illness perspectives as a main perspective, although they shifted between the perspectives depending of context and illness experience. The participants' illness perspectives were reflected in their understandings of self-management. Participants with a dominant life-oriented illness perspective performed self-management in order to continue living a 'normal' life (e.g. facilitate activity and mental well-being). When holding a disease-oriented illness perspective, self-management was focused upon controlling disease (e.g. symptom management and avoiding disease related complications).Conclusions. People with chronic illness hold a dominant illness perspective that determines how they understand and enact self-management. These perspectives are not static; instead individuals tend to shift between the perspectives under specific circumstances.Relevance to clinical practice. Health-care providers shall acknowledge that individuals' with chronic illness shift between a life-oriented and a di...
机译：目标。探索人们对慢性病的疾病观点和相关的自我管理背景。有人提出个人的疾病信念和观点会影响他们的自我管理行为。但是，研究了疾病观点对慢性病自我管理的影响的研究在很大程度上是定量的，并且侧重于自我管理的某些要素。尚未深入研究个体的疾病观点如何影响他们的整个自我管理。现象学研究涉及对患有各种慢性疾病的瑞典成年人进行了26次叙述性采访。数据大部分是在2006年收集的。参与者描述了两种疾病的观点。以生活为导向意味着要专注于疾病的良好生活，而以疾病为导向的疾病观点则强调疾病的医学和生理方面。参与者证明了两种疾病观点中的一种是主要观点，尽管他们根据情况和疾病经历在观点之间进行了转换。参与者对疾病的看法反映在他们对自我管理的理解中。具有主导性的以生命为导向的疾病观点的参与者进行自我管理，以继续过“正常”的生活（例如，促进活动和精神健康）。从以疾病为导向的疾病观点来看，自我管理的重点是控制疾病（例如症状管理和避免疾病相关的并发症）。患有慢性病的人拥有占主导地位的疾病观点，该观点决定了他们如何理解和制定自我管理。这些观点不是一成不变的。相反，个人倾向于在特定情况下在观点之间转移。与临床实践相关。卫生保健提供者应承认患有慢性病的人在以生活为导向和以疾病为导向的疾病之间转移。

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