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A self-management program for veterans and spouses living with Parkinson's disease

机译：针对患有帕金森氏病的退伍军人和配偶的自我管理计划

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A self-management program for veterans and spouses living with Parkinson's disease Aims and objectives. The objective of this study was to determine whether Veterans and their spouses would participate in a self-management educational programme where they would practise the principles of self-efficacy for managing their chronic illnesses. The programme was designed using the Chronic Disease Self-Management Program of Stanford University in Palo Alto, California. Background. Whereas programmes for self-management of chronic conditions (arthritis, AIDS, diabetes) have been established for some time, only a few specific programmes for Parkinson's disease had been cited in the literature at the time of this study. In this report, we describe our initial attempts at recruitment, administration and evaluation of this programme for a small group of participants with the specific intent of assessing its feasibility and appropriateness for Veterans seen in an outpatient setting. Conclusions. Our study revealed that participants were willing to commit to an intensive interventional programme, and within the group setting were able to apply the principles of self-efficacy with guidance from their peers and facilitator. The support of the group was a strong motivator for continued participation and the practice of self-management skills. However, the progression of Parkinson's disease and the lack of long-term follow-up prevented the identification of measurable significant changes. Relevance to clinical practice. Patients living with chronic illness appear to benefit from group educational programmes, and this format could be adapted for others living with neurodegenerative illnesses and other chronic conditions.
机译：针对患有帕金森氏病的退伍军人和配偶的自我管理计划。目的和目标。这项研究的目的是确定退伍军人及其配偶是否将参加自我管理教育计划，在该计划中他们将实践自我效能管理慢性病的原则。该程序是使用加利福尼亚州帕洛阿尔托市斯坦福大学的慢性病自我管理程序设计的。背景。尽管已经建立了用于自我管理慢性病（关节炎，艾滋病，糖尿病）的程序已有一段时间，但在本研究进行时，文献中仅引用了一些针对帕金森氏病的特定程序。在本报告中，我们描述了我们为一小部分参与者招募，管理和评估该计划的最初尝试，其具体目的是评估其门诊条件下对退伍军人的可行性和适当性。结论。我们的研究表明，参与者愿意参加强化干预计划，并且在小组环境下能够在同行和促进者的指导下应用自我效能原则。该小组的支持是继续参与和自我管理技能实践的强大动力。但是，帕金森氏病的进展和缺乏长期随访无法识别可测量的重大变化。与临床实践有关。患有慢性疾病的患者似乎可以从团体教育计划中受益，这种格式可以适应其他患有神经退行性疾病和其他慢性疾病的患者。

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