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A social capital framework for palliative care: Supporting health and well-being for people with life-limiting illness and their carers through social relations and networks

机译:姑息治疗的社会资本框架:通过社会关系和网络,为患有生命有限疾病的人及其护理人员提供健康和福祉

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Context: Social relations and networks are vital for sustaining and enhancing end-of-life care. The social capital concept supports a framework to understand the association between social relations and well-being; yet, to date, there has been very limited investigation of social capital in the palliative care literature. A framework for understanding social contexts in end-of-life care is necessary. Objectives: To summarize the literature on social capital, well-being, and quality of life for key outcomes to inform a model of social capital in palliative care. Methods: The electronic databases MEDLINE (1997 to March 2011), Embase (1997 to March 2011), CINAHL (1997 to March 2011), and PsycINFO (1997 to March 2011) were searched using key/MeSH search terms of "social capital," "palliative care," and "well-being" and/or "quality of life." The literature was reviewed to identify key concepts to develop and inform a palliative care social capital framework. Results: A total of 93 articles were included in the literature review, with only two articles identifying discourse on social capital and palliative care. Four key areas integrating the social capital outcomes informed a framework for palliative care. Conclusion: The social capital concept provides a structure for understanding how the organization and meaning of social contexts can potentially enhance or hinder end-of-life care. Research that identifies specificity in application of social capital concepts is fundamental to issues of access to services, sustaining levels of care, quality of life, and well-being. The importance of "bridged" social capital relations and networks for improved resource acquisition and information flow was identified in the literature and outlined within the palliative care social capital framework. Differential access to social capital by disadvantaged groups provides further impetus to engage a model of social capital for palliative care. ? 2013 Published by Elsevier Inc. on behalf of U.S. Cancer Pain Relief Committee.
机译:背景:社会关系和网络对于维持和加强生命终结护理至关重要。社会资本概念为理解社会关系与幸福之间的联系提供了框架。然而,迄今为止,姑息治疗文献中对社会资本的研究非常有限。必须有一个了解生命终结护理中社会环境的框架。目的:总结关于社会资本,幸福感和生活质量的关键成果文献,为姑息治疗中的社会资本模型提供参考。方法:使用关键字/ MeSH搜索词“社会资本”搜索MEDLINE(1997年至2011年3月),Embase(1997年至2011年3月),CINAHL(1997年至2011年3月)和PsycINFO(1997年至2011年3月)电子数据库。 ““姑息治疗”,“幸福”和/或“生活质量”。文献进行了审查,以确定关键概念,以发展和告知姑息治疗社会资本框架。结果:总共有93篇文章被纳入文献综述,只有两篇文章确定了关于社会资本和姑息治疗的论述。整合社会资本成果的四个关键领域为姑息治疗框架提供了依据。结论:社会资本概念为理解社会环境的组织和含义如何潜在地增强或阻碍临终关怀提供了一种结构。确定应用社会资本概念的特殊性的研究对于获得服务,维持护理水平,生活质量和福祉至关重要。文献中指出了“桥接的”社会资本关系和网络对于改善资源获取和信息流动的重要性,并在姑息治疗社会资本框架内进行了概述。弱势群体获得社会资本的不同途径进一步推动了采用社会资本进行姑息治疗的模式。 ? 2013年由Elsevier Inc.代表美国癌症疼痛缓解委员会出版。

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