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首页> 外文期刊>Journal of pediatric psychology >Literature review: health-related quality of life measurement in pediatric oncology: hearing the voices of the children.
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Literature review: health-related quality of life measurement in pediatric oncology: hearing the voices of the children.

机译：文献综述：小儿肿瘤学中与健康相关的生活质量测量：听到孩子们的声音。

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摘要

OBJECTIVES: The objective of this literature review is to provide an overview of the evidence for pediatric patient self-report in pediatric oncology. Methods A review of the general literature on pediatric health-related quality of life (HRQOL) measurement as background, with pediatric patient self-report data from the Journal of Pediatric Psychology during the past 5 years in pediatric oncology summarized. Utilizing the PedsQL available at (http://www.pedsql.org), data are presented to illustrate child and parent reports in pediatric oncology. Results Data demonstrate that children as young as 5 years of age can reliably and validly self-report their HRQOL when an age-appropriate instrument is utilized. Conclusions The evidence supports including pediatric patients' perspectives in clinical trials. Parent proxy-report is recommended when pediatric patients are too young, too cognitively impaired, too ill or fatigued to complete a HRQOL instrument, but not as a substitute for child self-report when the child is willing and able to provide their perspective.
机译：目的：本文献综述的目的是概述儿科肿瘤学中儿科患者自我报告的证据。方法回顾以儿科健康相关生活质量（HRQOL）测量为背景的一般文献，并以《儿科肿瘤学》过去5年的儿科患者自我报告数据为基础进行总结。利用（http://www.pedsql.org）上提供的PedsQL，可以提供数据来说明儿科肿瘤学中的儿童和父母报告。结果数据表明，使用适合年龄的仪器，年龄在5岁以下的儿童可以可靠，有效地自我报告自己的HRQOL。结论证据支持将儿科患者的观点纳入临床试验。当小儿患者年龄太小，认知能力受损，生病或疲倦而无法完成HRQOL仪器时，建议家长代理报告，但如果孩子愿意并能够提供自己的观点，则不能代替孩子的自我报告。

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