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首页> 外文期刊>Clinical immunology: The official journal of the Clinical Immunology Society >Keeping the patient perspective: Where are we in the world of type 1 diabetes?
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Keeping the patient perspective: Where are we in the world of type 1 diabetes?

机译：保持患者的观点：我们在1型糖尿病世界中的什么位置？

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Type 1 diabetes is a disease in which autoreactive immune cells attack and destroy the insulin producing beta cells of the pancreas rendering the subject dependent on exogenous insulin for survival.This statement, or one similar, is one that often starts off an article discussing type 1 diabetes (T1D). While it captures the scientific nature of the disease, it fails to capture the patient perspective of what the affliction truly means. As much as T1D is a disease of the beta cell, it is a disease of the soul. Patients, often children, are required to constantly 'be on' and frequently interact with their disease. This requires testing their blood sugar frequently, taking injections, monitoring their diet and much more. All these activities ultimately require adjusting their lives to accommodate the disease, and despite doing all of these for years, the disease remains unpredictable with frustrating glucose fluctuations. The stress that the disease brings affects not only the patient but also their family and loved ones. Any parent of a child with T1D lives in constant fear that a hypoglycemic episode may take their son or daughter in the middle of the night. It is for these reasons that the collective community of people affected by type 1 diabetes consists of extremely passionate individuals dedicated to the pursuit of eradicating the disease. The desire to alleviate the fears and health issues of affected individuals is what fuels our pursuit for a cure. It is why researchers volunteer for fundraisers and walks, why patients eagerly enroll for studies, and what unites us in our common cause. As we move forward, it is important to understand where we have come with T1D from the perspective of patients.
机译：1型糖尿病是一种疾病，其自身反应性免疫细胞攻击并破坏胰腺中产生胰岛素的β细胞，从而使受试者不得不依赖外源胰岛素来维持生存。这种说法或类似的说法经常从讨论1型的文章开始。糖尿病（T1D）。尽管它抓住了疾病的科学本质，却未能抓住患者对这种痛苦真正含义的看法。 T1D不仅是β细胞的疾病，还是心灵的疾病。患者（通常是儿童）需要不断“运转”并经常与他们的疾病互动。这需要经常测试他们的血糖，注射，监控饮食等等。所有这些活动最终都需要调整自己的生活来适应这种疾病，尽管已经做了很多年，但是由于令人沮丧的葡萄糖波动，这种疾病仍然无法预测。这种疾病带来的压力不仅影响患者，而且影响他们的家人和亲人。患有T1D的孩子的任何父母都始终担心，降糖事件可能会在深夜带走他们的儿子或女儿。出于这些原因，受1型糖尿病影响的人们的集体社区由极度热情的人们组成，他们致力于消灭这种疾病。减轻受感染者的恐惧和健康问题的愿望推动了我们对治疗的追求。这就是为什么研究人员自愿参加募捐活动和散步的原因，为什么患者渴望参加研究以及是什么使我们团结在我们的共同事业中。在我们前进的过程中，从患者的角度了解T1D的优势非常重要。

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