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首页> 外文期刊>Journal of the American Academy of Nurse Practitioners. >The invisible and visible stigmatization of Parkinsons disease
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The invisible and visible stigmatization of Parkinsons disease

机译：帕金森病无形和可见的污名化

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Purpose: To discuss the visible and invisible stigma shared by seven men and seven women with Parkinson's disease (PD), a chronic, progressive, neurode-generative disorder characterized by overt physical and covert psychological manifestations. Data sources: An ethnographic approach using interview data, participant observations, and fieldwork was used. Field data were generated from a 2-year exposure to two PD support groups in east Texas. The question "what does it mean to you to have Parkinson's disease"? illuminated the experience of everyday life and the existential meaning of what it means to live with this disease.Conclusions: The invisible stigma was that of a changing self, a self with PD, a form of disability, which attested to the stigma and mounting isolation. Feelings of isolation were exacerbated by both the stigmatization associated with being different, coupled with the realization that life would never be the same. Facial masking was identified as one of the visible features that were commonly reported by all participants.Implications for practice: Healthcare professionals can be more attuned to the visible and invisible manifestations of PD that are associated with stigma through the incorporation of a holistic assessment to identify perceived stigma in persons living with the disease.
机译：目的：探讨帕金森病（PD）的七名男性和七名女性所共有的可见和不可见的污名，帕金森病是一种慢性，进行性，神经退行性疾病，以明显的身体和秘密的心理表现为特征。数据来源：使用人种学方法，使用访谈数据，参与者观察和田野调查。实地数据来自对德克萨斯州东部两个PD支持小组进行为期2年的接触得出的结果。问题“患有帕金森氏病对您意味着什么”？结论：无形的污名是不断变化的自我，患有PD的自我，一种残疾形式的事实，证明了这种污名和日益孤立。与众不同带来的污名化，加之人们对生活永远不会相同的认识，加剧了孤独感。面部掩膜被认为是所有参与者普遍报告的可见特征之一。对实践的启示：医护专业人员可以通过整合整体评估来更好地适应与耻辱相关的PD的可见和不可见表现。在患有这种疾病的人身上感觉到的污名。

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