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首页> 外文期刊>Journal of the American Medical Informatics Association : >Clinical research data warehouse governance for distributed research networks in the USA: A systematic review of the literature
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Clinical research data warehouse governance for distributed research networks in the USA: A systematic review of the literature

机译：美国分布式研究网络的临床研究数据仓库治理：文献的系统评价

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摘要

Objective: To review the published, peer-reviewed literature on clinical research data warehouse governance in distributed research networks (DRNs). Materials and methods: Medline, PubMed, EMBASE, CINAHL, and INSPEC were searched for relevant documents published through July 31, 2013 using a systematic approach. Only documents relating to DRNs in the USA were included. Documents were analyzed using a classification framework consisting of 10 facets to identify themes. Results: 6641 documents were retrieved. After screening for duplicates and relevance, 38 were included in the final review. A peer-reviewed literature on data warehouse governance is emerging, but is still sparse. Peer-reviewed publications on UK research network governance were more prevalent, although not reviewed for this analysis. All 10 classification facets were used, with some documents falling into two or more classifications. No document addressed costs associated with governance. Discussion: Even though DRNs are emerging as vehicles for research and public health surveillance, understanding of DRN data governance policies and procedures is limited. This is expected to change as more DRN projects disseminate their governance approaches as publicly available toolkits and peer-reviewed publications. Conclusions: While peer-reviewed, US-based DRN data warehouse governance publications have increased, DRN developers and administrators are encouraged to publish information about these programs.
机译：目的：回顾有关分布式研究网络（DRN）中临床研究数据仓库治理的已发表的，经过同行评审的文献。材料和方法：使用系统方法，检索了截至2013年7月31日发布的相关文件，包括Medline，PubMed，EMBASE，CINAHL和INSPEC。仅包括与美国DRN相关的文件。使用由10个方面组成的分类框架对文档进行分析，以识别主题。结果：检索到6641个文档。在筛选出重复和相关性之后，最终审查中包括38个。同行评审的有关数据仓库治理的文献正在涌现，但仍然很少。尽管没有对此分析进行审查，但有关英国研究网络治理的同行评审出版物更为普遍。使用了所有10个分类方面，有些文档分为两个或多个分类。没有文件涉及与治理相关的成本。讨论：尽管DRN逐渐成为研究和公共卫生监视的工具，但对DRN数据治理政策和程序的理解仍然有限。随着越来越多的DRN项目将其治理方法作为可公开获得的工具包和经过同行评审的出版物进行传播，这种情况有望改变。结论：在经过同行评审的美国DRN数据仓库管理出版物有所增加的同时，鼓励DRN开发人员和管理员发布有关这些程序的信息。

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