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首页> 外文期刊>Biopreservation and biobanking >Don't Take It Personal: European Union Legal Aspects of Procuring and Protecting Environmental Exposure Data in Population Biobanks Through the Use of a Geo-Information-Systems Toolkit
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Don't Take It Personal: European Union Legal Aspects of Procuring and Protecting Environmental Exposure Data in Population Biobanks Through the Use of a Geo-Information-Systems Toolkit

机译：不要个人化：通过使用地理信息系统工具包来获取和保护种群生物库中环境暴露数据的欧盟法律方面

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摘要

Under European Union (EU) law, population-based cohort studies have the right to collect environmental data and to access geospatial data, at street level, on the web, from a host of public sources. As to geospatial information, they should be able to avail themselves of Member States' networks of services for geospatial data sets and services (discovery, viewing, downloading) via the Internet. On the other hand, linkage of health data of biobank participants to environmental data, using geospatial data, is limited, as it must satisfy the provisions of the EU Directive on the Protection of Personal Data, pursuant to which geospatial data regarding biobank participants are likely to qualify as personal data. Hence, we submit that the consents of biobank participants be reviewed to assess whether they cover the generation and linkage of geospatial data. We also submit that biobanks must have measures in place to prevent the re-identification of participants by use of their geospatial data. We present a model Geographic-Information-Systems (GIS) Toolkit, as an example of what measures could be taken to that effect.
机译：根据欧盟（EU）法律，以人群为基础的队列研究有权在网上通过网络从大量公共资源中收集环境数据并访问地理空间数据。关于地理空间信息，它们应该能够利用会员国的服务网络通过互联网获取地理空间数据集和服务（发现，查看，下载）。另一方面，使用地理空间数据将生物数据库参与者的健康数据与环境数据关联起来是有限的，因为它必须满足欧盟《关于保护个人数据的指令》的规定，据此，有关生物数据库参与者的地理空间数据可能会有资格作为个人数据。因此，我们认为需要对生物库参与者的同意进行审查，以评估它们是否涵盖了地理空间数据的生成和链接。我们还认为，生物库必须采取适当的措施，以防止使用参与者的地理空间数据重新识别参与者。我们提供了一个模型的地理信息系统（GIS）工具包，作为可以采取何种措施达到这种效果的示例。

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