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Establishing and Sustaining a Biorepository Network in Israel: Challenges and Progress

机译:在以色列建立和维持生物储存网络:挑战与进展

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摘要

Over the past 5 years, using European and North American biobanks as models, the grass-roots establishment of independently operating biobanks has occurred virtually simultaneously in large Israeli teaching hospitals. The process of establishing a national biorepository network in Israel has progressed slowly, sustained mainly by a few proponents working together on a personal level. Slow progress has been due to limited funding and the lack of a legal framework specific to biobanking activities. Recently, due to increasing pressure from the scientific community, the government has earmarked funds for a national biorepository network, and the structure is now being established. In forming a network, Israel's biobanks face certain difficulties, particularly lack of support. Additional challenges include harmonization of standard operating procedures, database centralization, and use of a common informed consent form. In this article, we highlight some of the issues faced by Israel's biobank managers in establishing and sustaining a functional biobank network, information that could provide guidance for other small countries with limited resources.
机译:在过去的五年中,以欧洲和北美的生物库为模型,独立运作的生物库的基层建立实际上同时发生在以色列的大型教学医院中。在以色列建立国家生物资源库网络的进程进展缓慢,主要是由一些支持者在个人层面上共同努力所支持。进展缓慢是由于资金有限以及缺乏专门针对生物银行活动的法律框架。最近,由于来自科学界的压力越来越大,政府已拨出专款用于建立国家生物资源库网络,目前正在建立该结构。以色列的生物库在形成网络时面临某些困难,尤其是缺乏支持。其他挑战包括标准操作程序的统一,数据库的集中化以及通用知情同意书的使用。在本文中,我们重点介绍了以色列生物库管理者在建立和维持有效的生物库网络方面面临的一些问题,这些信息可以为资源有限的其他小国提供指导。

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