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首页> 外文期刊>Biopreservation and biobanking >Willingness to Donate Human Samples for Establishing a Dermatology Research Biobank: Results of a Survey
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Willingness to Donate Human Samples for Establishing a Dermatology Research Biobank: Results of a Survey

机译：捐赠人类样品以建立皮肤病研究生物库的意愿：调查结果

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There is a rising need for biomaterial in dermatological research with regard to both quality and quantity. Research biobanks as organized collections of biological material with associated personal and clinical data are of increasing importance. Besides technological/methodological and legal aspects, the willingness to donate samples by patients and healthy volunteers is a key success factor. To analyze the theoretical willingness to donate blood and skin samples, we developed and distributed a questionnaire. Six hundred nineteen questionnaires were returned and analyzed. The willingness to donate samples of blood (82.5%) and skin (58.7%) is high among the population analyzed and seems to be largely independent of any expense allowance. People working in the healthcare system, dermatological patients, and higher qualified individuals seem to be in particular willing to donate material. An adequate patient insurance as well as an extensive education about risks and benefits is requested. In summary, there is a high willingness to donate biological samples for dermatological research. This theoretical awareness fits well with our own experiences in establishing such a biobank.
机译：就质量和数量而言，在皮肤病学研究中对生物材料的需求不断增长。研究性生物库作为具有相关个人和临床数据的生物材料的有组织集合，变得越来越重要。除了技术/方法和法律方面，患者和健康志愿者捐赠样品的意愿是成功的关键因素。为了分析理论上捐献血液和皮肤样本的意愿，我们开发并分发了一份问卷。返回了619份问卷并进行了分析。在所分析的人群中，捐献血液样本（82.5％）和皮肤样本（58.7％）的意愿很高，而且似乎在很大程度上与任何津贴无关。从事医疗保健系统工作的人们，皮肤病患者以及高素质的个人似乎特别愿意捐赠物资。要求有足够的患者保险以及有关风险和利益的广泛教育。总而言之，捐赠皮肤样本用于皮肤病学研究的意愿很高。这种理论上的认识与我们建立此类生物库的经验非常吻合。

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