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首页> 外文期刊>Clinical and experimental allergy : >The psychosocial impact of anaphylaxis on young people and their parents.
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The psychosocial impact of anaphylaxis on young people and their parents.

机译：过敏反应对年轻人及其父母的社会心理影响。

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BACKGROUND: Anaphylaxis is a potentially life-threatening disorder that can affect people of all ages. Young people are at a disproportionately increased risk of anaphylaxis deaths for reasons that include a failure to institute appropriate long-term management regimens. A pre-requisite for effective supported self-management of young people with anaphylaxis is a better understanding of the factors that contribute to risk-taking behaviour. OBJECTIVE: To explore the psychosocial impact of living with anaphylaxis on adolescents and their parents; their management of the condition; and perceptions of health care provision. METHODS: In-depth interviews were conducted with 15 participants, these comprising of seven adolescents aged between 13 and 16 years with a history of clinician-diagnosed anaphylaxis and eight of their parents, in this Scottish community-based exploratory qualitative study. RESULTS: Adolescents in this study typically perceived anaphylaxis as 'no big deal', describing a relatively low impact on their day-to-day life when compared with their parents. This could largely be explained by the fact that most adolescents could not remember an anaphylactic reaction. Key obstacles to effective long-term self-management included inadequate knowledge to support detailed situation-specific risk assessment, this being compounded by a lack of confidence to make further enquiries about the ingredients of meals when with peers. Parents reported anxiety about 'handing over' the main responsibility for avoidance and emergency management to their children. Medical support for these families was very limited, with primary care teams in some cases actively hindering effective self-management. CONCLUSION: Having a child with anaphylaxis can have a significant long-term psychological impact on parents and this anxiety may in some cases be transferred from parents onto their children. Parents and adolescents may benefit from tailored information to support the transition from parental- to self-management by adolescents. Access to appropriate national health service primary and specialist care was in some cases currently inadequate to support effective long-term management. Further, more in-depth research in a more heterogeneous group of adolescents is needed.
机译：背景：过敏反应是一种潜在的威胁生命的疾病，可影响各个年龄段的人。由于未能建立适当的长期管理方案等原因，年轻人遭受过敏性反应死亡的风险成比例增加。有效地支持过敏性反应的年轻人自我管理的先决条件是更好地了解导致冒险行为的因素。目的：探讨过敏性反应对青少年及其父母的社会心理影响;他们对病情的管理;以及对医疗服务的看法。方法：在这项基于苏格兰社区的探索性定性研究中，对15位参与者进行了深度访谈，其中包括7位年龄在13至16岁之间，具有临床医生诊断的过敏反应史的青少年以及8位父母。结果：本研究中的青少年通常认为过敏反应“没什么大不了的”，与父母相比，其对日常生活的影响相对较小。大多数青少年不记得有过敏反应，这一事实在很大程度上可以解释。有效的长期自我管理的主要障碍包括缺乏足够的知识来支持针对具体情况的详细风险评估，此外，与同龄人在一起时缺乏对餐食成分的进一步询问的信心也加剧了这一情况。父母表示担心将“避免”和应急管理的主要责任“移交给”他们的孩子。这些家庭的医疗支持非常有限，在某些情况下，初级保健团队积极地阻碍了有效的自我管理。结论：有过敏反应的孩子会对父母产生长期的重大心理影响，在某些情况下，这种焦虑可能会从父母转移到孩子身上。父母和青少年可能会从量身定制的信息中受益，以支持青少年从父母管理向自我管理的过渡。在某些情况下，目前无法获得适当的国家卫生服务的初级和专科护理以支持有效的长期管理。此外，还需要对异类青少年进行更深入的研究。

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