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The traveling athlete: From jet leg to jet lag

机译:旅行的运动员:从时差到时差

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Parents of pediatric oncology patients are faced with difficult decisions when their child reaches the end of life. For health care providers to provide optimal care, they must understand parents' perspectives and preferences in end-of-life decision making. Therefore, this article provides a systematic review of the literature on the end-of-life decision making of parents of children with cancer as well as recommendations for practice and future research. Parents participated in surveys, focus groups, participant observation, and interviews to help researchers understand the expectations, hopes, fears, and values that guide their decision making. Common themes were patient-provider communication, extending time, and understanding prognosis.
机译:当他们的孩子快要寿终正寝时,儿科肿瘤科患者的父母将面临艰难的决定。为使医疗保健提供者提供最佳护理,他们必须了解父母在临终决策中的观点和偏好。因此,本文提供了有关癌症儿童父母的临终决策的文献的系统综述,并为实践和未来研究提供了建议。父母参加了调查,焦点小组,参与者的观察和访谈,以帮助研究人员了解指导其决策的期望,希望,恐惧和价值观。常见主题是患者与提供者之间的沟通,延长时间和了解预后。

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