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Critical Financial Challenges for Biobanking: Report of a National Cancer Institute Study

机译：生物库的关键财务挑战：国家癌症研究所研究的报告

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Background: Researchers and other key stakeholders in biobanking often do not have a thorough understanding of the true costs and challenges associated with initiating, running, and maintaining a biobank. The National Cancer Institute's Biorepositories and Biospecimen Research Branch (BBRB) commissioned the Biobanking Financial Sustainability survey to better understand the challenges that biobanks face in supporting ongoing operations. A series of interviews with biobanking managers and an international focus group session informed the content of the survey. Methods: The design of the survey included five main sections, each containing questions related to primary topics as follows: general demographics, operations, funding sources, costs, and financial challenges. While the survey focused on financial issues and challenges, it also explored staffing and strategic planning as these issues relate to the sustainability of operations and financial support. U.S. and international biobanks were included in the survey. Results: Biobanks in general are dependent on public funding and most biobanks do not have formal plans for the long-term stewardship of their collections. Respondents are working at a critical level of personnel and are not in a position to further reduce staffing. Smaller biobanks in particular need assistance in defining reasonable cost recovery user fees for biospecimens and related services. Conclusions: The survey results highlight several issues that are important for long-term biobank sustainability. It is critical to prepare for such issues as effective biobanking practices have increasingly been recognized as a key component for the advancement of precision medicine.
机译：背景：生物库中的研究人员和其他主要利益相关者经常对与发起，跑步和维护生物人士相关的真实成本和挑战并无彻底了解。国家癌症研究所的生物数据库和生物开发主义研究分支机构（BBRB）委托了生物汉的金融可持续发展调查，以更好地了解BioBanks面临支持持续运营的挑战。一系列与生物管理经理和国际焦点集团会议的采访通知了调查内容。方法：调查的设计包括五个主要部分，每个主要部分包含与主要主题相关的问题，如下所示：一般人口统计数据，运营，资金来源，费用和财务挑战。虽然调查侧重于财务问题和挑战，但它还探讨了人员配置和战略规划，因为这些问题涉及业务和财政支持的可持续性。美国和国际BIOBANK被列入调查。结果：Biobanks一般取决于公共资金，大多数Biobanks没有正式计划他们的集合的长期管理。受访者正在致力于批判性的人员，并无法进一步减少人员配置。较小的BioBanks特别需要帮助，以确定合理的成本恢复用户费用的生物开发和相关服务。结论：调查结果突出了几个对长期生物人物可持续性重要的问题。为这些问题做准备至关重要，因为有效的生物管理实践越来越多地被认为是进步精确药物的关键组成部分。

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