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首页> 外文期刊>Biopreservation and biobanking >Evaluating the German Biobank Node as Coordinating Institution of the German Biobank Alliance: Engaging with Stakeholders via Survey Research
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Evaluating the German Biobank Node as Coordinating Institution of the German Biobank Alliance: Engaging with Stakeholders via Survey Research

机译：评估德国BIOBANK节点作为德国BIOBANK联盟的协调机构：通过调查研究与利益攸关方参与

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Background: The German Biobank Node (GBN) is the central hub for German biobank activities and coordinates the German Biobank Alliance (GBA) to which 11 biobank sites in Germany belong. GBN, in cooperation with designated members of GBA, has developed various services and products for the German biobank community. To ensure that services and products are well aligned with the needs and interests of relevant stakeholders, GBN actively engages with its diverse stakeholder groups through different methods. Important stakeholder groups are the members of GBA who are generally the first users of developed products and services. Methods and Materials: Members of GBA were surveyed anonymously through a web-based application. The survey was sent to all members registered with an internal communication platform. Participants were primarily asked about their experiences with GBN, developed products and services, their wishes for the future of GBN/GBA, and their attitudes toward intensified cooperation on the European level. Answers were analyzed using descriptive statistics and qualitative content analysis. Results: Overall 63 of 110 registered GBA members (response rate of 57%) finished the survey. Participants were overall satisfied with the work of GBN and developed products and services. They also pointed out room for improvement. Participants, for example, proposed to shorten the survey developed for biobanks to engage with their users. They also shared what additional support wishes they had, for example, uniform cost models or use and access policies for the GBA community. Discussion: The survey was helpful to get a good overview of the experiences and attitudes of GBA members before making services and products available to other actors in the German biobank community. GBN will use the feedback to improve its work and to guide future strategy development. Survey research has shown an adequate method to engage with this particular stakeholder group, but further research on choosing methods for stakeholder engagement might be helpful.
机译：背景：德国Biobank节点（GBN）是德国Biobank活动的中心中心，并协调德国Biobank联盟（GBA），德国11个Biobank地点属于。与GBA指定成员合作，GBN开发了德国Bioband社区的各种服务和产品。为确保服务和产品与相关利益攸关方的需求和利益一致，GBN通过不同的方法积极与其不同的利益相关方群体与其不同的利益相关方。重要的利益相关者团体是GBA的成员，通常是开发产品和服务的第一个用户。方法和材料：GBA的成员通过基于Web的应用程序匿名调查。该调查被发送给在内​​部通信平台注册的所有成员。与会者主要询问他们对GBN，开发产品和服务的经验，他们对GBN / GBA未来的愿望，以及他们对欧洲水平加强合作的态度。使用描述性统计和定性内容分析分析答案。结果：110名110名注册GBA成员（响应率为57％）完成了调查。与会者对GBN的工作和开发产品和服务的工作非常满意。他们还指出了改进的空间。例如，参与者建议缩短为BioBanks开发的调查与他们的用户聘用。他们还分享了他们所拥有的额外支持，例如，统一的成本模型或用于GBA社区的使用和访问策略。讨论：该调查有助于在德国Bioband社区的其他行动者提供服务和产品之前，对GBA成员的经验和态度进行良好的概述。 GBN将利用反馈来改善其工作并引导未来的战略发展。调查研究表明，与此特定利益相关者小组进行了充分的方法，但进一步研究了利益相关者参与的选择方法可能会有所帮助。

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