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首页> 外文期刊>Clinics in dermatology >Mal de Meleda: A great imitator
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Mal de Meleda: A great imitator

机译：Meleda Bad：在伟大的模仿者

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Mal de Meleda is an hereditary palmoplantar keratodenna named for the Mljet Island in Croatia. The lives of those affected by this disease represent a complex situation that encompasses members of a vulnerable group. They require enlightenment and should be approached with awareness, taking into account their overall psychophysical status and the environment of each patient. Those afflicted with Mal de Meleda not only have to deal with a difficult life due to their affliction, but they also must cope with the hardships of socialization while trying to realize a normal life within their island community. This is compounded by the frequent interviews and examinations of researchers interested in the various aspects of their illness. The subject of this contribution is not about the nature of this disease, rather about the traces it has left on the (sub)consciousness of the population. It is also concerned with exploring ways of how to access patients and understanding the depth of their vulnerability. We present some thoughts tied to the interpersonal experiences of researchers and patients afflicted with Mal de Meleda. (C) 2019 Elsevier Inc. All rights reserved.
机译：Maldemeleda是一位遗传性棕榈酱Keratodenna，为克罗地亚的Mljet岛命名。受该疾病影响的人的生命代表了一种复杂的局势，包括一个弱势群体的成员。他们需要启示，并应以意识到，考虑到每个患者的整体心理物理状态和环境。那些患有麦雷梅的人不仅必须因其痛苦而造成艰难的生活，但他们也必须应对社会化的艰辛，同时在试图实现岛屿社区内的正常生活。这是通过对其疾病各个方面感兴趣的研究人员的频繁访谈和考试复杂化。这一贡献的主题并不是关于这种疾病的性质，而是关于它留下的痕迹，它留下了人口的（子）意识。它还涉及如何探索如何访问患者并理解其脆弱性深度的方式。我们向研究人员和患者的人际经历带来了一些思考，患有MAL DE MELEDA的患者。 （c）2019 Elsevier Inc.保留所有权利。

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