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'I'm taking control': how people living with HIV/AIDS manage stigma in health interactions

机译:“我正在控制”:人们与艾滋病毒/艾滋病的人如何在健康互动中管理耻辱

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摘要

Despite international efforts, stigma is still a significant issue for people living with HIV/AIDS (PLWHA). This paper explores the stigma encountered in health interactions, focusing on strategies PLWHA use to manage and reduce it. It is hoped that our findings will improve future interactions by contributing towards a more understanding practitioner-patient relationship. The data have been drawn from a small qualitative study conducted in Christchurch, New Zealand. Fourteen participants took part in semi-structured face-to-face interviews in 2013 and 11 of these participants were then interviewed again in 2014. Codes and themes were developed through inductive thematic analysis of the interview transcripts. Our findings identified that whilst the majority of participants had positive experiences, nearly all had faced stigma during their health interactions. Most of these encounters were due to healthcare workers holding exaggerated fears of transmission or not maintaining confidentiality and privacy. The main way that participants managed this stigma was through seeking control in their interactions. This overarching strategy could be further divided into three key themes: selective disclosure of their HIV status, self-advocacy and developing their HIV knowledge. We discuss these findings in the context of the current literature, comparing our results to strategies that have been previously identified in social settings.
机译:尽管国际努力,耻辱仍然是艾滋病毒/艾滋病(PLWha)的人们的重要问题。本文探讨了健康互动中遇到的耻辱,专注于策略PLWHA用于管理和减少它。希望我们的调查结果将通过促进更加了解的从业者的关系来改善未来的互动。这些数据已从新西兰基督城进行的小型定性研究中汲取。十四名与会者参加了2013年的半结构化面对面访谈,然后在2014年再次采访了11名参与者中。通过对面试成绩单的归纳专题分析,通过归纳专题分析制定了代码和主题。我们的调查结果确定,虽然大多数参与者有积极的经历,但几乎所有人都在健康互动过程中面临耻辱。大多数这些遭遇都是由于医疗保健工人夸大了对传输的恐惧或不保持机密性和隐私。参与者管理这种耻辱的主要方式是通过寻求互动的控制。这种总体战略可以进一步分为三个关键主题:选择性披露其艾滋病毒状况,自我宣传和发展艾滋病毒知识。我们在目前文献的背景下讨论这些调查结果,将我们的结果与先前在社交环境中确定的策略进行比较。

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