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Research participation, trust, and fair compensation among people living with and without HIV in Florida

机译:在佛罗里达州生活和没有艾滋病毒的人们之间的研究参与,信任和公平赔偿

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Florida has the second highest number of newly diagnosed cases of HIV in the United States. Sociodemographic representation that is reflective of the population is essential in developing evidence based interventions to improve HIV outcomes and reduce disparities. Understanding HIV research trial participation, preferences for types of research, and fair compensation for research will further our understanding of someone's decision to participate in research. The purpose of this analysis was to identify differences in prior research participation, trust, interests in types of research, and fair compensation between people living with HIV and without HIV in North Central Florida. In this sample of 8340 people interviewed in the community about their health concerns and research participation, 156 reported living with HIV. Only 20.5% of people with HIV reported past participation in research, however 94.2% said they were interested in future research participation. While people with HIV were slightly more interested in higher risk/low convenience research, there were no statistically significant differences in preferences for types of research between those with and without HIV. People with HIV reported no difference in the amount they would request for fair compensation ($78.4 USD) compared with those without HIV ($72.2 USD, p=0.69). Community members are interested in participating in research, although few had previously participated. Improving our understanding of research study participation will help improve recruitment efforts and draw stronger conclusions regarding the effectiveness of interventions, as well as enhance implementation of these interventions.
机译:佛罗里达州在美国拥有第二大患有新诊断的艾滋病毒病例。对人口的反映的社会造影表示对于制定基于证据的干预措施来改善艾滋病毒成果和减少差异。了解艾滋病毒研究试验参与,对研究类型的偏好以及对研究的公平补偿将进一步了解某人参与研究的决定。该分析的目的是识别先前研究参与,信任,研究类型的差异,以及佛罗里达州中部艾滋病毒与艾滋病毒的人们之间的公平补偿。在这个关于社区的8340人的样本中,关于他们的健康问题和研究参与,156人报告患有艾滋病毒。只有20.5%的艾滋病毒患者报告过去参与研究,但94.2%表示他们对未来的研究参与感兴趣。虽然艾滋病毒的人对较高风险/低便利性研究有稍微感兴趣,但对于有和没有艾滋病毒的人之间的研究类型没有统计学上显着的差异。艾滋病毒的人们报告的金额没有任何差异,他们将申请公平赔偿金额(78.4美元)与没有艾滋病毒(72.2美元,P = 0.69美元)。社区成员有兴趣参与研究,虽然据此在参加过。提高我们对研究的理解参与将有助于改善招聘努力,并在有关干预措施的有效性以及加强这些干预措施的实施方面提高更强的结论。

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