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首页> 外文期刊>Alzheimer disease and associated disorders >Discrepancies Between Alzheimer's Disease Patients' and Caregivers' Ratings About Patients' Quality of Life: A 1-year Observation Study in Brazil
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Discrepancies Between Alzheimer's Disease Patients' and Caregivers' Ratings About Patients' Quality of Life: A 1-year Observation Study in Brazil

机译：阿尔茨海默病患者和护理人员对患者生活质量的差异差异：巴西1年的观察研究

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Objectives:We investigated the factors associated with discrepancies between patients' and caregivers' ratings about patients' general quality of life (QoL) and about the domains of Quality of Life in Alzheimer's disease (QoL-AD) Scale at baseline and 12 months.Methods:This was a longitudinal study that comprised 114 outpatients with AD and their caregivers. Patients were assessed with the QoL-AD, Mini-mental State Examination, Assessment Scale of Psychosocial Impact of the Diagnosis of Dementia, Cornell Scale for Depression, Functional Activities Questionnaire, and Neuropsychiatric Inventory, and Clinical Dementia Rating Scale. Caregivers answered the QoL-AD, Zarit Burden Interview and Sociodemographic Questionnaire.Results:Linear regression analyses indicated that the factors associated with discrepancies of patients' and caregivers' ratings of patients' QoL-AD were impaired awareness and caregiver burden at baseline and impaired awareness at 12 months. Moreover, the factor associated with discrepancies in the domain memory was impaired awareness and in the domain ability to do chores, impaired awareness and functional deficit.Conclusions:The discrepancies between patients and caregivers were related to awareness and caregiver burden at baseline and to awareness at 12 months. These results raise questions regarding the subjective nature of QoL and the validity of patients' evaluation of their own QoL.
机译：目标：我们调查了与患者和护理人员评级对患者普通生活质量（QOL）的差异的差异有关的因素，以及在基线和12个月的阿尔茨海默病（QOL-AD）规模中的生活质量域名。方法：这是一个纵向研究，包括114名与广告和护理人员的门诊病人。患者通过QoL-AD，迷你精神状态检查，患者的心理社会影响评估规模进行评估，痴呆症诊断，康奈尔规模抑郁，功能活动问卷和神经精神症库存，以及临床痴呆评级规模。照顾者回答了QoL-AD，Zarit负担访谈和社会阶段调查问卷。结果：线性回归分析表明，与患者和护理人员对患者QoL广告的差异相关的因素受损的基线意识和护理人员负担受损，对患者的意识和照顾者负担受损在12个月。此外，与域内记忆的差异相关的因素受到意识，有意识和核心，意识障碍和功能赤字的域的能力受损。结论：患者和护理人员之间的差异与基线的意识和照顾者负担有关12个月。这些结果提出了关于QOL主观性质的问题和患者对自己QoL的患者的有效性。

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