Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR) Part 1

Staats Katrine; Grov Ellen Karine; Husebo Bettina; Tranvag Oscar

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Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR) Part 1

机译：患者和非正式护理人员参与研究的框架（Paicpair）第1部分

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The term user involvement is frequently applied in research. Frameworks for patient and informal caregiver participation as coresearchers in studies concerning patients with life-threatening illness are however sparse. The PhD project Dying With Dignity-Dignity-Preserving Care for Older Women Living at Home With Incurable Cancer has implemented a thorough cooperation with patients and informal caregivers from the early stages of the research process. A framework for Patient and Informal Caregiver Participation In Research (PAICPAIR) is suggested-creating a stronger foundation for democracy, equality, and research quality by also promoting active participation among vulnerable people experiencing incurable, life-threatening illness, as coresearchers.

机译：用户参与的术语通常在研究中应用。患者和非正式护理人员作为研究人员在研究危及生命疾病患者的研究人员中稀疏的框架。博士项目与患有可毁灭性癌症住在家的老年妇女的尊严尊严保存保健伴随着与患者和非正式护理人员从研究过程的早期阶段进行了彻底的合作。患者和非正式护理人员参与研究（PAICPAIR）的框架被建议为民主，平等和研究质量创造更强的基础，通过促进体验弱势危及生命疾病的脆弱人士，作为科学研究员。

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《ANS. Advances in nursing science》 |2020年第2期|共13页
作者
Staats Katrine; Grov Ellen Karine; Husebo Bettina; Tranvag Oscar;
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作者单位

Univ Bergen Dept Global Publ Hlth &

Primary Care Ctr Elderly &

Nursing Home Med Kalfarveien 31;

Oslo Metropolitan Univ Inst Nursing &

Hlth Promot Oslo Norway;

Univ Bergen Dept Global Publ Hlth &

Primary Care Ctr Elderly &

Nursing Home Med Kalfarveien 31;

Univ Bergen Dept Global Publ Hlth &

Primary Care Ctr Elderly &

Nursing Home Med Kalfarveien 31;

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原文格式 PDF
正文语种 eng
中图分类护理学;
关键词
home health care; human dignity; palliative care; practice guidelines; research; research ethics; user involvement;

机译：家庭医疗保健;人类尊严;姑息治疗;实践指南;研究;研究道德;用户参与;

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1. Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR) Part 1 [J] . Staats Katrine, Grov Ellen Karine, Husebo Bettina, ANS. Advances in nursing science . 2020,第2期

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2. An organizing framework for informal caregiver interventions: detailing caregiving activities and caregiver and care recipient outcomes to optimize evaluation efforts [J] . Courtney H Van Houtven, Corrine I Voils, Morris Weinberger BMC Geriatrics . 2011,第1期

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3. The economic value of informal care: a study of informal caregivers' and patients' willingness to pay and willingness to accept for informal care. [J] . van den Berg B, Bleichrodt H, Eeckhoudt L Health economics . 2005,第4期

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4. A Technology Assisted Framework for Medical Emergencies Involving Formal and Informal Caregivers [C] . Md Akbar Hossain 2018 IEEE Intl Conf on Parallel amp; Distributed Processing with Applications, Ubiquitous Computing amp; Communications, Big Data amp; Cloud Computing, Social Computing amp; Networking, Sustainable Computing amp; Communications . 2018

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6. Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR) [O] . Katrine Staats, Ellen Karine Grov, Bettina Husebø, -1

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7. Stroke patients' informal caregivers: Patient, caregiver, and service factors that affect caregiver strain [O] . Bugge, Carol, Alexander, Helen, Hagen, Suzanne 1999

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Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR) Part 1

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