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首页> 外文期刊>Archives of dermatological research. >Quality of life and contact with healthcare systems among patients with psoriasis and psoriatic arthritis: results from the NORdic PAtient survey of Psoriasis and Psoriatic arthritis (NORPAPP)
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Quality of life and contact with healthcare systems among patients with psoriasis and psoriatic arthritis: results from the NORdic PAtient survey of Psoriasis and Psoriatic arthritis (NORPAPP)

机译：牛皮癣和银屑病患者的生活质量和与医疗保健系统接触：牛皮癣和银屑病关节炎的北欧患者调查结果（NORPAPP）

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摘要

Psoriasis (skin psoriasis, PsO) is a chronic inflammatory condition. In about one-third of cases, the joints are affected (psoriatic arthritis, PsA). Both conditions, especially PsA, profoundly impact patients' health-related quality of life (HRQoL). To describe the impact of psoriasis on HRQoL and patients' contact with the healthcare system in Sweden, Denmark, and Norway, the NORdic PAtient survey of Psoriasis and Psoriatic arthritis (NORPAPP) asked 22,050 adults randomly selected in Sweden, Denmark and Norway if they had psoriasis. 1264 individuals who reported physician-diagnosed PsO/PsA were invited to the full survey; 1221 responded (74.6% diagnosed with PsO alone; 25.4% with PsA +/- PsO). Respondents with PsA most frequently consulted a rheumatologist; however, 14.3% had never seen a rheumatologist. Respondents with PsO alone most frequently consulted a general practitioner and 10.7% had never seen a dermatologist (although those with severe symptoms visited dermatologists more often). Negative impacts on HRQoL were reported by 38.1% of respondents with PsO [mostly limitations on clothing (22.6%), sleep disorders (16%), and depression/anxiety (16%)] and by 73% of respondents with PsA [mostly limitations on clothing (41.8%), sports/leisure (44.0%), or daily routine (45.1%) and sleeping disorders]. Absence from work/education was more common with PsA +/- PsO (51.9%) than PsO alone (15.1%). In this survey in Sweden, Denmark, and Norway, the impact of psoriasis on the respondents' HRQoL was profound and was greater for PsA than for PsO, as was sickness absence. Sleeping disorders and depression were common and should not be overlooked.
机译：牛皮癣（皮肤牛皮癣，PSO）是慢性炎症病症。在大约三分之一的情况下，关节受到影响（银屑病关节炎，PSA）。条件，尤其是PSA，深刻地影响患者的健康状况生活质量（HRQOL）。为了描述牛皮癣对瑞典，丹麦和挪威医疗保健系统的影响，牛皮癣和银屑病关节炎（NorpApp）的北欧患者调查（NorpApp）在瑞典，丹麦和挪威随机选择了22,050名成年人银屑病。报告医生诊断的PSO / PSA的1264名个人被邀请到全面调查; 1221次应答（74.6％仅诊断PSO; 25.4％，PSA +/-PSO）。 PSA的受访者最常咨询风湿病学;然而，14.3％从未见过风湿病学者。只有PSO的受访者最常咨询一般从业者，10.7％从未见过皮肤科医生（尽管那些严重症状的人经常访问皮肤病学家）。通过PSO的38.1％的受访者报告了对HRQOL对HRQOL的负面影响[大多是衣物的限制（22.6％），睡眠障碍（16％）和抑郁/焦虑（16％）]和73％的受访者有PSA [主要是限制在服装（41.8％），运动/休闲（44.0％）或日常生活（45.1％）和睡眠障碍]。与单独的PSA +/- PSO（51.9％）更常见的工作/教育（51.9％）（15.1％）。在瑞典，丹麦和挪威的这项调查中，牛皮癣对受访者HRQOL的影响是深刻的，对于PSA而言比PSO更大，因为疾病缺席。睡眠障碍和抑郁症是常见的，不应该被忽视。

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