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首页> 外文期刊>International journal of geriatric psychiatry >Why do staff and family think differently about quality of life in dementia? A qualitative study exploring perspectives in care homes
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Why do staff and family think differently about quality of life in dementia? A qualitative study exploring perspectives in care homes

机译：为什么员工和家人思考不同的痴呆症生活质量？ 探索护理家园的视角的定性研究

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Background Quality of life is important especially in incurable illness. In dementia, we often need proxy reports of quality of life, but we know little about how individuals make their judgements. In care homes, proxies may be staff providing care or relatives, but staff rate quality of life differently to family. To our knowledge, no one has explored this qualitatively, so we used qualitative interviews to explore why staff and family think differently about quality of life. Methods We interviewed 12 staff and 12 relatives who had provided proxy ratings of quality of life for people living with dementia in care homes in the Managing Agitation and Raising Quality of life (MARQUE) study. We asked why they had rated the resident's quality of life as “Very Good, Good, Fair, or Poor.” Using thematic analysis, we compared staff and relatives' proxy responses. Results For staff, the concept of quality of life was often viewed synonymously with quality of care, influenced by their sense of responsibility and informed by their professional understanding. For relatives, quality of life was often judged in relation to how the person with dementia lived before diagnosis and was influenced by their perception of loss for the person with dementia and their own adjustment. Conclusions Proxy reports were influenced by rater's own contexts and experiences. This can enhance our understanding of widely used research tools, aid the evaluation of intervention outcomes, and indicate possible targets for improving perceived and actual quality of life of people with dementia.
机译：背景技术生活质量很重要，尤其是可治愈的疾病。在痴呆症中，我们经常需要提出的生活质量报告，但我们对个人如何判断。在护理家庭中，代理人可能是提供护理或亲戚的工作人员，但员工对家庭的生活质量不同。为了我们的知识，没有人探讨了这个定性，所以我们使用定性面试来探索为什么员工和家人对生活质量有所不同。方法采访了12名员工和12个亲属，为在管理激动和提高生命质量（Marque）学习的痴呆家庭中，为痴呆症患者提供了痴呆症的痴呆症的人民评级。我们问为什么他们将居民的生活质量评为“非常好，好，公平或穷人”。使用主题分析，我们比较了员工和亲戚的代理回应。员工的成果，生活质量概念往往是与责任感相同的关怀，受到他们的责任感，并通过他们的专业理解来获悉。对于亲属来说，常常与痴呆前患有痴呆前的人的生活质量判断，并受到他们对痴呆症的损失的看法以及自己的调整的影响。结论代理报告受到Rater自己的背景和经验的影响。这可以提高我们对广泛使用的研究工具的理解，有助于评估干预结果，并表明有可能改善痴呆症患者的生活质量和实际生活质量的目标。

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