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首页> 外文期刊>European journal of cancer care >Participation rates of childhood cancer survivors to self‐administered questionnaires: a systematic review
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Participation rates of childhood cancer survivors to self‐administered questionnaires: a systematic review

机译：儿童癌症幸存者对自我管理问卷的参与率：系统审查

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摘要

This review aimed to assess participation rates of childhood cancer survivors ( CCS ) invited to fill out a health‐related questionnaire. Additionally, effects of study and CCS characteristics on participation rates were examined. PubMed, Web of Science, Ovid ( EMBASE ) and CINAHL databases were searched. Publications included were questionnaire‐based studies among CCS diagnosed with cancer before the age of 21, alive at least 5?years past diagnosis and aged 16?years or older at the time of study. Thirty‐five studies were included; the median participation rate was 65%. Sixteen studies reported information about CCS actively declining participation (median rate 5%). Five study characteristics seemed to influence participation rates: the use of reminders and incentives, the option to answer a shortened questionnaire, the recruitment of participants through their general practitioner and a pre‐notification before sending out the questionnaire. Furthermore, CCS characteristics related to improved participation were female gender, Caucasian ethnicity and a higher educational level. The results of this study will help to improve the (methodological) quality of future questionnaire‐based studies among CCS , thereby increasing our knowledge about late effects among this group of survivors.
机译：该审查旨在评估邀请填写健康相关问卷的儿童癌症幸存者（CCS）的参与率。此外，研究了研究和CCS特征对参与率的影响。搜索了PubMed，Science Web，Ovid（Embase）和Cinahl数据库。包括在21岁之前被诊断为癌症的CCS的问卷研究，至少5？年龄过去诊断和年龄在学习时年龄或以上。包括三十五项研究;中位数参与率为65％。十六研究报告了关于CCS积极下降参与（中位数5％）的信息。五项研究特征似乎影响参与率：使用提醒和激励措施，选择回答缩短调查问卷的选项，通过他们的普通从业者招募与会者，并在发出调查问卷前进行预先通知。此外，与改善参与有关的CCS特征是女性性别，高加索种族和更高的教育水平。本研究的结果将有助于改善CCS中未来问卷的研究的（方法论）质量，从而提高了我们对这群幸存者之间的后期影响的知识。

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