Implementation and Feasibility of Electronic Patient-Reported Outcome (ePRO) Data Entry in the PRAEGNANT Real-Time Advanced and Metastatic Breast Cancer Registry

Wallwiener Markus; Heindl Felix; Brucker Sara Y.; Taran Florin-Andrei; Hartkopf Andreas; Overkamp Friedrich; Kolberg Hans-Christian; Hadji Peyman; Tesch Hans; Ettl Johannes; Lux Michael P.; Rauh Claudia; Blum Simon; Nabieva Naiba; Brodkorb Tobias F.; Faschingbauer Cornelia; Langemann Hanna; Schulmeyer Carla; Volz Bernhard; Ruebner Matthias; Lueftner Diana; Mueller Volkmar; Belleville Erik; Janni Wolfgang; Fehm Tanja N.; Wallwiener Diethelm; Ganslandt Thomas; Beckmann Matthias W.; Schneeweiss Andreas; Fasching Peter A.; Gass Paul

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Implementation and Feasibility of Electronic Patient-Reported Outcome (ePRO) Data Entry in the PRAEGNANT Real-Time Advanced and Metastatic Breast Cancer Registry

机译：电子患者报告的结果（EPRO）数据进入的实施和可行性在PreaEndant实时先进和转移性乳腺癌登记处

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Purpose Patient-reported outcomes (PROs) have been incorporated into clinical trials for many symptoms and medical conditions. A transition from paper-based capture of PROs to electronic PROs (ePROs) has recently started. This study reports on the feasibility of ePRO assessment in a prospective registry including molecular data for patients with advanced breast cancer.

机译：目的患者报告的结果（专业人士）已纳入许多症状和医疗条件的临床试验中。最近开始从纸质捕获专业人员（EPROS）的转型。本研究报告了EPRO评估在预期登记中的可行性，包括用于晚期乳腺癌的患者的分子数据。

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《Geburtshilfe und Frauenheilkunde》 |2017年第8期|共9页
作者
Wallwiener Markus; Heindl Felix; Brucker Sara Y.; Taran Florin-Andrei; Hartkopf Andreas; Overkamp Friedrich; Kolberg Hans-Christian; Hadji Peyman; Tesch Hans; Ettl Johannes; Lux Michael P.; Rauh Claudia; Blum Simon; Nabieva Naiba; Brodkorb Tobias F.; Faschingbauer Cornelia; Langemann Hanna; Schulmeyer Carla; Volz Bernhard; Ruebner Matthias; Lueftner Diana; Mueller Volkmar; Belleville Erik; Janni Wolfgang; Fehm Tanja N.; Wallwiener Diethelm; Ganslandt Thomas; Beckmann Matthias W.; Schneeweiss Andreas; Fasching Peter A.; Gass Paul;
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作者单位

Heidelberg Univ Dept Obstet &

Gynecol Heidelberg Germany;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Univ Tubingen Dept Obstet &

Gynecol Tubingen Germany;

Univ Tubingen Dept Obstet &

Gynecol Tubingen Germany;

Univ Tubingen Dept Obstet &

Gynecol Tubingen Germany;

Outpatient Dept Hematol &

Oncol Recklinghausen Germany;

Marienhosp Bottrop Bottrop Germany;

Nordwest Hosp Frankfurt Germany;

Onkol Bethanien Frankfurt Germany;

Tech Univ Munich Dept Obstet &

Gynecol Munich Germany;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Charite Dept Hematol Oncol &

Tumor Immunol Campus Benjamin Franklin Berlin Germany;

Hamburg Eppendorf Univ Med Ctr Dept Gynecol Hamburg Germany;

Clin Sol Ltd Wurzburg Germany;

Ulm Univ Hosp Dept Gynecol &

Obstet Ulm Germany;

Heinrich Heine Univ Dusseldorf Dept Gynecol &

Obstet Dusseldorf Germany;

Univ Tubingen Dept Obstet &

Gynecol Tubingen Germany;

Friedrich Alexander Univ Erlangen Nuremberg Chair Med Informat Erlangen Germany;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Heidelberg Univ Dept Obstet &

Gynecol Heidelberg Germany;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

Friedrich Alexander Univ Erlangen Nuremberg Comprehens Canc Ctr Erlangen EMN Erlangen Univ Hosp;

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原文格式 PDF
正文语种 eng
中图分类妇产科学;
关键词
breast cancer; patient-reported outcomes; electronic data capture; compliance; quality of life;

机译：乳腺癌;患者报告的结果;电子数据捕获;遵守;生活质量;

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专利

1. Implementation and Feasibility of Electronic Patient-Reported Outcome (ePRO) Data Entry in the PRAEGNANT Real-Time Advanced and Metastatic Breast Cancer Registry [J] . Wallwiener Markus, Heindl Felix, Brucker Sara Y., Geburtshilfe und Frauenheilkunde . 2017,第8期

机译：电子患者报告的结果（EPRO）数据进入的实施和可行性在PreaEndant实时先进和转移性乳腺癌登记处
2. Complementing clinical cancer registries with patient-reported outcome data - a feasibility study on routine ePRO assessment for the Austrian Myeloma Registry [J] . Sztankay Monika, Neppl Lucia, Wintner Lisa, Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation . 2018,第Suppla1期

机译：补充患者报告的结果数据的临床癌症注册表 - 奥地利骨髓瘤登记处的常规EPRO评估的可行性研究
3. Feasibility test of a UK-scalable electronic system for regular collection of patient-reported outcome measures and linkage with clinical cancer registry data: The electronic Patient-reported Outcomes from Cancer Survivors (ePOCS) system [J] . Laura Ashley, Helen Jones, David Forman, BMC Medical Informatics and Decision Making . 2011,第1期

机译：英国可扩展的电子系统的可行性测试，用于定期收集患者报告的结局指标并与临床癌症登记数据关联：电子报告的癌症幸存者结果（ePOCS）系统
4. Availability and Usability of the Hospital-based Cancer Registry Data for Measuring the Quality Outcome Indicators of Healthcare Provided to Breast and Colorectal Cancer Patients at King Hussein Cancer Center [C] . Amid Abu Hmaidan, Elsie Boutou, Khaled Jamal, International Conference on Cancer Care Informatics . 2018

机译：基于医院的癌症登记系统数据的可用性和可用性，用于测量侯赛因国王癌症中心提供给乳腺癌和结直肠癌患者的医疗保健质量结果指标
5. Development of pathway-based biomarker in breast cancer and assessment of feasibility of integratng transcriptomics data in electronic health record. [D] . Rahman, Mumtahena. 2015

机译：乳腺癌中基于通路的生物标志物的开发以及将转录组学数据整合到电子健康记录中的可行性评估。
6. Feasibility test of a UK-scalable electronic system for regular collection of patient-reported outcome measures and linkage with clinical cancer registry data: The electronic Patient-reported Outcomes from Cancer Survivors (ePOCS) system [O] . Laura Ashley, Helen Jones, David Forman, 2011

机译：英国可扩展电子系统的可行性测试用于定期收集患者报告的结局指标并与临床癌症登记数据关联：电子报告的癌症幸存者结局（ePOCS）系统
7. Implementation and Feasibility of Electronic Patient-Reported Outcome (ePRO) Data Entry in the PRAEGNANT Real-Time Advanced and Metastatic Breast Cancer Registry [O] . Markus Wallwiener, Felix Heindl, Sara Brucker, 2017

机译：电子患者报告的结果（EPRO）数据进入的实施和可行性在预巢实时先进和转移性乳腺癌登记处

Implementation and Feasibility of Electronic Patient-Reported Outcome (ePRO) Data Entry in the PRAEGNANT Real-Time Advanced and Metastatic Breast Cancer Registry

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