Engaging Maori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities

Beaton Angela; Hudson Maui; Milne Moe; Port Ramari Viola; Russell Khyla; Smith Barry; Toki Valmaine; Uerata Lynley; Wilcox Phillip; Bartholomew Karen; Wihongi Helen

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Engaging Maori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities

机译：在Biobanking和Genomic研究中吸引毛利语：生物人物模型，以指导文化知情的治理，运营和社区参与活动

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摘要

Purpose: He Tangata Kei Tua, a relationship model for biobanks, was developed to facilitate best practice in addressing Maori ethical concerns by guiding culturally informed policy and practice for biobanks in relation to governance, operational, and community engagement activities.

机译：目的：何唐纳斯·柯尼，是生物人物的关系模型，是制定的，以促进通过指导与治理，业务和社区参与活动相关的文化知情的政策和实践来解决毛罗士道德问题的最佳实践。

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来源
《Genetics in medicine》 |2017年第3期|共7页
作者
Beaton Angela; Hudson Maui; Milne Moe; Port Ramari Viola; Russell Khyla; Smith Barry; Toki Valmaine; Uerata Lynley; Wilcox Phillip; Bartholomew Karen; Wihongi Helen;
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作者单位

Waikato Inst Technol Hamilton New Zealand;

Univ Waikato Hamilton New Zealand;

Te Moemoea Ltd DipTeaching Moerewa New Zealand;

Otago Polytech Otago New Zealand;

Lakes Dist Hlth Board Rotorua New Zealand;

Univ Waikato Hamilton New Zealand;

Univ Waikato Hamilton New Zealand;

Univ Otago Otago New Zealand;

Waitemata Dist Hlth Board Westlake New Zealand;

Waitemata Dist Hlth Board Westlake New Zealand;

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原文格式 PDF
正文语种 eng
中图分类医学遗传学;
关键词
biobanking; genomic research; governance; Indigenous; Maori;

机译：Biobancing;基因组研究;治理;土着;毛利;

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1. Engaging Maori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities [J] . Beaton Angela, Hudson Maui, Milne Moe, Genetics in medicine . 2017,第3期

机译：在Biobanking和Genomic研究中吸引毛利语：生物人物模型，以指导文化知情的治理，运营和社区参与活动
2. Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model [J] . Paulina Tindana, Aminu Yakubu, Ciara Staunton, BMC Medical Ethics . 2019,第1期

机译：与研究伦理委员会合作，制定非洲基因组研究和生物银行最佳实践的伦理和治理框架：H3Africa模型
3. Negotiating Requests for Reimbursement for Community Engagement: Challenges in Developing an Educational Video for Genomic Biobanking Research in South Africa [J] . Staunton Ciara, Abayomi Akin, Bassa Fatima, Journal of empirical research on human research ethics : . 2019,第5期

机译：谈判偿还社区参与的请求：在制定南非基因组生物管理研究的教育视频方面的挑战
4. Service-Learning projects in environmental engineering courses: Models of community engagement activities [C] . Kulkarni Tara 2014 Zone 1 Conference of the American Society for Engineering Education . 2014

机译：环境工程课程中的服务学习项目：社区参与活动的模型
5. Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model [O] . Paulina Tindana, Aminu Yakubu, Ciara Staunton, 2019

机译：与研究伦理委员会合作制定非洲基因组研究和生物银行最佳实践的伦理和治理框架：H3Africa模型
6. Engaging Māori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities [O] . Beaton, Angela, Hudson, Maui, Milne , Moe, 2016

机译：让毛利人参与生物银行和基因组研究：生物银行指导文化知情的治理，运营和社区参与活动的模型

Engaging Maori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities

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