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首页> 外文期刊>Research in nursing & health >A Case Study of Engaging Hard-to-Reach Participants in the Research Process: Community Advisors on Research Design and Strategies (CARDS)(R)
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A Case Study of Engaging Hard-to-Reach Participants in the Research Process: Community Advisors on Research Design and Strategies (CARDS)(R)

机译：对研究过程中难以解决的参与者参与的案例研究：研究设计和策略的社区顾问（卡）（R）

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Lack of diversity among study participants in clinical research limits progress in eliminating health disparities. The engagement of lay stakeholders, such as patient or community advisory boards (CABs), has the potential to increase recruitment and retention of underrepresented groups by providing a structure for gathering feedback on research plans and materials from this target population. However, many CABs intentionally recruit prominent stakeholders who are connected to or comfortable with research and academia and thus may not accurately represent the perspectives of underrepresented groups who have been labeled hard-to-reach, including racial minorities and low-income or low-literacy populations. We developed a partnership between the University of Wisconsin-Madison School of Nursing and two community centers to deliberately engage hard-to-reach people in two lay advisory groups, the Community Advisors on Research Design and Strategies (CARDS)(R). Community center staff recruited the CARDS from center programs, including parenting and childcare programs, women's support groups, food pantries, and senior meal programs. The CARDS model differs from other CABs in its participants, processes, and outcomes. Since 2010, the CARDS have met monthly with nurses and other researchers, helping them understand how research processes and the language, tone, appearance, and organization of research materials can discourage people from enrolling in clinical studies. We have successfully used the CARDS model to bring hard-to-reach populations into the research process and have sustained their participation. The model represents a promising strategy for increasing the diversity of participants in clinical research. (c) 2016 Wiley Periodicals, Inc.
机译：临床研究中的研究参与者缺乏多样性限制了消除卫生差异的进展。划分利益攸关方（如患者或社区咨询委员会）的参与，有可能通过提供关于从该目标人口的研究计划和材料的反馈来增加征收和保留不足的群体。然而，许多驾驶室故意招募与研究和学术界相连或舒适的突出利益相关者，因此可能无法准确地代表被标记为难以达到的群体，包括种族少数群体和低收入或低扫盲的观点人口。我们在威斯康星大学 - 麦迪逊 - 麦迪逊护理学院和两个社区中心之间开展了合作伙伴关系，以刻意聘请两名职位咨询群体，研究设计和策略（卡）的社区顾问（r）。社区中心工作人员从中心计划招募了卡片，包括育儿和儿童保育计划，妇女的支持小组，食品储藏室和高级餐饮计划。卡片模型与其参与者，流程和结果的其他出租车不同。自2010年以来，该卡每月都会遇到护士和其他研究人员，帮助他们了解研究过程和语言，语气，外观和组织研究材料的组织如何阻止人们参加临床研究。我们已成功使用卡片模型将难以达到的人口纳入研究过程，并持续参与。该模型代表了增加临床研究中参与者多样性的有希望的策略。 （c）2016 Wiley期刊，Inc。

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