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首页> 外文期刊>Sociology of health & illness >The cycle of uncertainty: parents' experiences of childhood epilepsy
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The cycle of uncertainty: parents' experiences of childhood epilepsy

机译：不确定性的循环：父母的儿童癫痫经历

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摘要

Uncertainty has been highlighted as an important aspect of experiences of chronic conditions generally and epilepsy in particular. However, there is little research exploring the extent to which uncertainty features in the experiences of family members or the form that this uncertainty may take. Drawing on in-depth semi-structured interviews with 27 parents who had a child with epilepsy, this article explores parents' experiences of uncertainty and the way in which their views on childhood and epilepsy interacted and contributed to the uncertainties they experienced. It is argued that the occurrence of epilepsy during childhood shaped parents' experiences as they used their 'social clocks' in order to interpret symptoms. Furthermore, parents described what has been termed a 'cycle of uncertainty'. Indeed, the combination of epilepsy (a condition with various inherent forms of uncertainty) and childhood (a period in the life course that is seen as a time of development) meant that parents could not be sure which changes in their child were a result of the condition and which were a normal part of the ageing process. Overall, this article demonstrates that it is important to contextualise experiences of chronic conditions in relation to different stages in the life course.
机译：不确定性被强调为慢性条件的经验，尤其是慢性病的重要方面。但是，几乎没有研究探索家庭成员或这种不确定性可能采取的形式的不确定性特征的程度。本文探讨了与癫痫患儿的27名父母的深入半结构化访谈，探讨了父母的不确定性的经历，以及他们对童年和癫痫的观点的方式互动，并为他们所经历的不确定性做出贡献。有人认为，童年父母在使用他们的“社会时钟”以解释症状时，癫痫患者的经历发生。此外，父母描述了什么已被称为“不确定性循环”。实际上，癫痫组合（一种具有各种固有形式的不确定性的条件）和童年（作为发展时间的生命课程的一个时期）意味着父母无法确定他们孩子的哪个变化是结果该病症，是老化过程的正常部分。总的来说，本文表明，对于生活课程中不同阶段的慢性条件的体现是重要的。

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