...
  • 主题
高级搜索  >
历史搜索 清空历史
首页> 外文期刊>Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer >Care burden and its predictive factors in parents of newly diagnosed children with acute lymphoblastic leukemia in academic hospitals in China
【24h】

Care burden and its predictive factors in parents of newly diagnosed children with acute lymphoblastic leukemia in academic hospitals in China

机译：在中国学术院急性淋巴细胞白血病患儿父母的护理负担及其预测因素

获取原文
获取原文并翻译 | 示例
           
页面导航
  • 摘要
  • 著录项
  • 相似文献
  • 相关主题

摘要

Abstract Purpose Caring for children with acute lymphoblastic leukemia (ALL) is a distressing experience for parents without medical training. The experience can lead to parents’ care burden. This study explored care burden among parents of children with ALL and its related factors. Methods A total of 130 parents were surveyed with the Zarit Burden Inventory (ZBI), Perceived Social Support Scale (PSSS), Zung’s Self-rating Anxiety Scale (SAS), Zung’s Self-rating Depression Scale (SDS), Medical Outcome Study Short Form 36 (SF-36), and a study specific demographic information questionnaire. Independent-samples T test, one-way ANOVA, Pearson correlation analysis and multivariate linear regression analysis (stepwise method), and binomial logistic regression were used in data analysis. Results The mean score of parents’ care burden overall was 37.74?±?16.57, 17 (13.08%) had little or no burden, 57 (43.85%) had mild-to-moderate burden, 44 (33.84%) had moderate-to-severe burden, and 12 (9.23%) had severe burden. Regression analyses indicated daily care time, anxiety, general health, average monthly family income, social support, and number of co-caregivers were factors associated with care burden. These variables accounted for 51% of the variance in care burden. Other demographic information of parents and children, depression, and other dimensions of SF-36 were not related to care burden. The severe burden level was associated the increase risk of emotional distress compared with little or no burden group (OR?=?37.500, 95% CI?=?4.515–311.348, P ?=?0.001). Conclusion The results indicated that care burden in parents of children newly diagnosed with ALL is high. Parents with lower levels of care burden tend to have less daily care time, more co-caregivers, higher income, less anxiety, better general health, and social support. Strategies are needed to help reduce parents’ care burden.
机译：摘要目的关心急性淋巴细胞白血病的儿童（全部）是父母没有医疗培训的令人痛苦的经验。这些经验可能导致父母的护理负担。本研究探讨了所有及其相关因素的儿童家长的护理负担。方法采用Zarit负担库存（ZBI），共同调查了130名父母，感知社会支持规模（PSS），Zung的自我评级焦虑尺度（SAS），Zung的自评抑郁症（SAS），医疗结果研究短36（SF-36）和一项关于具体人口统计信息问卷。独立样本T检验，单向ANOVA，Pearson相关分析和多变量线性回归分析（逐步方法）和二项式逻辑回归在数据分析中使用。结果父母护理负担的平均得分为37.74？±16.57,17，17（13.08％）几乎没有或没有负担，57（43.85％）受到温和至中等的负担，44（33.84％）具有中等至 - 卷重，12（9.23％）的负担严重。回归分析表明日常监护时间，焦虑，一般健康，平均每月家庭收入，社会支持以及共同护理人员的数量是与护理负担相关的因素。这些变量占护理负担方差的51％。父母和儿童，抑郁症和其他维度的其他人口统计信息和SF-36的其他维度与护理负担无关。严重的负担水平与少数或没有负担组（或？= 37.500,95％CI，P？= 0.001）相比，严重的负荷水平与情绪困扰的风险增加结论结果表明，新诊断的儿童父母的护理负担很高。较低的护理负担较低的父母往往具有较少的日常监护时间，更多的共同照顾者，更高的收入，焦虑，更好的一般健康和社会支持。需要策略来帮助减少父母的护理负担。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱：kefu@zhangqiaokeyan.com

京公网安备：11010802029741号 ICP备案号：京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有

  • 客服微信

  • 服务号