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首页> 外文期刊>Pediatric diabetes. >Reduced burden of diabetes and improved quality of life: Experiences from unrestricted day‐and‐night hybrid closed‐loop use in very young children with type 1 diabetes
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Reduced burden of diabetes and improved quality of life: Experiences from unrestricted day‐and‐night hybrid closed‐loop use in very young children with type 1 diabetes

机译：减少糖尿病的负担和提高生活质量：在患有1型糖尿病的非常幼儿中，无限制的日夜杂交闭环的经验

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摘要

Abstract Objective To evaluate the experiences of families with very young children aged 1 to 7 years (inclusive) with type 1 diabetes using day‐and‐night hybrid closed‐loop insulin delivery. Methods Parents/caregivers of 20 children aged 1 to 7 years with type 1 diabetes completed a closed‐loop experience survey following two 3‐week periods of unrestricted day‐and‐night hybrid closed‐loop insulin therapy using Cambridge FlorenceM system at home. Benefits, limitations, and improvements of closed‐loop technology were explored. Results Responders reported reduced burden of diabetes management, less time spent managing diabetes, and improved quality of sleep with closed‐loop. Ninety percent of the responders felt less worried about their child's glucose control using closed‐loop. Size of study devices, battery performance and connectivity issues were identified as areas for improvement. Parents/caregivers wished for more options to input information to the system such as temporary glucose targets. Conclusions Parents/caregivers of very young children reported important quality of life benefits associated with using closed‐loop, supporting adoption of this technology in this population.
机译：摘要目的利用白天杂交闭环胰岛素递送评估1至7年（包括1型糖尿病的家庭的家庭经验（包括1型糖尿病。方法患有1型糖尿病患者1至7年的20名儿童的父母/护理人员完成了在家里使用剑桥Florencem系统的无限日和夜间杂交闭环胰岛素治疗的两个3周期后完成了闭环经验调查。探讨了闭环技术的益处，限制和改进。结果响应者报告说，糖尿病管理的负担减少，少花费管理糖尿病，以及闭环睡眠质量。九十百分之九十的响应者使用闭环对孩子的葡萄糖控制感到不太担心。学习设备的大小，电池性能和连接问题被确定为改进的区域。父母/看护人希望更多选择输入信息，例如临时血糖目标。结论非常幼儿的父母/照顾者报告了与使用闭环相关的重要生活效益，支持在这一人口中采用这种技术。

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  • 来源
    《Pediatric diabetes.》 |2019年第6期|共6页
  • 作者

    Musolino Gianluca; Dovc Klemen; Boughton Charlotte K.; Tauschmann Martin; Allen Janet M.; Nagl Katrin; Fritsch Maria; Yong James; Metcalfe Emily; Schaeffer Dominique; Fichelle Muriel; Schierloh Ulrike; Thiele Alena G.; Abt Daniela; Kojzar Harald; Mader Julia K.; Slegtenhorst Sonja; Ashcroft Nicole; Wilinska Malgorzata E.; Sibayan Judy; Cohen Nathan; Kollman Craig; Hofer Sabine E.; Fr?hlich‐Reiterer Elke; Kapellen Thomas M.; Acerini Carlo L.; de Beaufort Carine; Campbell Fiona; Rami‐Merhar Birgit; Hovorka Roman; on behalf of Kidsap Consortium;

  • 作者单位

    Wellcome Trust‐MRC Institute of Metabolic ScienceUniversity of CambridgeCambridge UK;

    Department of Paediatric Endocrinology Diabetes and Metabolic DiseasesUniversity Children's;

    Wellcome Trust‐MRC Institute of Metabolic ScienceUniversity of CambridgeCambridge UK;

    Wellcome Trust‐MRC Institute of Metabolic ScienceUniversity of CambridgeCambridge UK;

    Wellcome Trust‐MRC Institute of Metabolic ScienceUniversity of CambridgeCambridge UK;

    Department of Pediatrics and Adolescent MedicineMedical University of ViennaVienna Austria;

    Department of Pediatrics and Adolescent MedicineMedical University of ViennaVienna Austria;

    Department of Paediatric DiabetesLeeds Children's HospitalLeeds UK;

    Department of Paediatric DiabetesLeeds Children's HospitalLeeds UK;

    Department of Pediatric Diabetes and EndocrinologyClinique Pédiatrique Centre;

    Department of Pediatric Diabetes and EndocrinologyClinique Pédiatrique Centre;

    Department of Pediatric Diabetes and EndocrinologyClinique Pédiatrique Centre;

    Division for Paediatric DiabetologyUniversity of LeipzigLeipzig Germany;

    Department of Pediatrics IMedical University of InnsbruckInnsbruck Austria;

    Department of Internal Medicine Division of Endocrinology and DiabetologyMedical University of;

    Department of Internal Medicine Division of Endocrinology and DiabetologyMedical University of;

    Department of Nutrition &

    DieteticsCambridge University Hospitals NHS Foundation TrustCambridge UK;

    Wellcome Trust‐MRC Institute of Metabolic ScienceUniversity of CambridgeCambridge UK;

    Wellcome Trust‐MRC Institute of Metabolic ScienceUniversity of CambridgeCambridge UK;

    Jaeb Center for Health ResearchTampa Florida;

    Jaeb Center for Health ResearchTampa Florida;

    Jaeb Center for Health ResearchTampa Florida;

    Department of Pediatrics IMedical University of InnsbruckInnsbruck Austria;

    Department of Pediatrics and Adolescent MedicineMedical University of GrazGraz Austria;

    Division for Paediatric DiabetologyUniversity of LeipzigLeipzig Germany;

    Department of PaediatricsUniversity of CambridgeCambridge UK;

    Department of Pediatric Diabetes and EndocrinologyClinique Pédiatrique Centre;

    Department of Paediatric DiabetesLeeds Children's HospitalLeeds UK;

    Department of Pediatrics and Adolescent MedicineMedical University of ViennaVienna Austria;

    Wellcome Trust‐MRC Institute of Metabolic ScienceUniversity of CambridgeCambridge UK;

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  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类 儿科学;
  • 关键词

    artificial pancreas; closed‐loop insulin delivery; type 1 diabetes; very young children;

    机译：人工胰腺;闭环胰岛素递送;1型糖尿病;非常幼儿;

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