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首页> 外文期刊>Pediatric Hematology and Oncology >Parent illness appraisals, parent adjustment, and parent-reported child quality of life in pediatric cancer
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Parent illness appraisals, parent adjustment, and parent-reported child quality of life in pediatric cancer

机译：父母疾病评估，父母调整，父母报告儿童癌症的儿童生活质量

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摘要

Psychosocial distress is a salient construct experienced by families of children with newly diagnosed cancer, but little is known about parental appraisal of the child's illness and the subsequent impact this may have on child and parent functioning. The goal of the present study was to examine the interrelationships among multiple parent illness appraisals, parent adjustment outcomes, and parent-reported child quality of life in parents of children diagnosed with cancer. Parents completed measures of illness appraisal (illness uncertainty and attitude toward illness), parent adjustment (general distress, posttraumatic stress, parenting stress), and child quality of life (general and cancer-related). Path analysis revealed direct effects for parent illness uncertainty and illness attitudes on all 3 measures of parent adjustment. Illness uncertainty, but not illness attitudes, demonstrated a direct effect on parent-reported child general quality of life; parenting stress had direct effects on general and cancer-related quality of life. Exploratory analyses indicated that parent illness uncertainty and illness attitudes conferred indirect effects on parent-reported general and cancer-related quality of life through parenting stress. Negative parent illness appraisals appear to have adverse impacts on parents' psychosocial functioning and have implications for the well-being of their child with cancer.
机译：心理社会痛苦是具有新诊断癌症的儿童家庭经历的突出构建，但对儿童疾病的父母评估很少，随后对儿童和父母运作的影响。本研究的目标是在诊断患有癌症的儿童父母中审查多个父母疾病评估，父母调整结果和亲本报告的儿童生活中的相互关系。父母完成了疾病评估的措施（疾病的不确定性和对疾病态度），父母调整（一般痛苦，错误的压力，育儿压力），以及儿童生活质量（一般和癌症相关）。路径分析显示对母体疾病不确定性和疾病态度的直接影响，父母调整的所有3个措施。疾病不确定性，但不是疾病态度，表明了对父母报告的儿童一般生活质量的直接影响;育儿压力对一般和癌症相关的生活质量有直接影响。探索性分析表明，母体疾病不确定性和疾病态度通过育儿压力赋予母体报告的一般和癌症相关的生活质量的间接影响。阴性父母疾病评估似乎对父母的心理社会功能产生了不利影响，并对他们儿童患有癌症的幸福感产生了影响。

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