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The Liminal and the Parallax: Living and Dying at the End of Life

机译:纯净和视差:在生命结束时生存和死亡

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Transitions to palliative care can involve a shift in philosophy from life-prolonging to life-enhancing care. People living with a life-limiting illness will often receive palliative care through specialist outpatient clinics, while also being cared for by another medical specialty. Experiences of this point of care have been described as being liminal in character, that is, somewhere between living and dying. Drawing on experiences of illness and care taken from semistructured interviews with 30 palliative care outpatients in Australia, we found that this phase was frequently understood as concurrently living and dying. We suggest that this is a parallax experience involving narratives of a coherent linear self that is able to understand both realities, in a way that acknowledges the benefits of being multiple. These findings have significant implications for the ways in which palliative care is understood and how the self and subjectivity might be conceptualized at the end of life.
机译:对姑息治疗的过渡可以涉及从延长生命的哲学的哲学转变为生命的照顾。 患有寿命疾病的人通常会通过专家门诊诊所获得姑息治疗,同时也被另一位医学专业所关心。 这种护理点的经验被描述为纯粹的性格,即生活和死亡之间的某个地方。 绘制澳大利亚30个姑息治疗门诊的疾病和护理的经验,我们发现这一阶段经常被理解为同时生活和死亡。 我们认为这是一个涉及能够理解这两个现实的连贯线性自我的叙述的视差体验,以一种承认多倍的益处。 这些发现对姑息治疗所理解的方式以及自我和主体性可能在生命结束时概念化的方式具有重要意义。

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