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Carer Experience Supporting Someone With Dementia and Cancer: A Narrative Approach

机译:Carer经验支持患有痴呆和癌症的人:一种叙事方法

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In this article, we examine the challenges of informal carers supporting someone with dementia and cancer within the United Kingdom. Interviews were conducted with seven informal carers using a narrative approach to examine the construction of their experiences. Our findings demonstrate how informal carers navigate a path through complex cancer treatments and support their relative. A cancer diagnosis often requires multiple treatment visits to an oncology center, and this can be challenging for carers. They find that they need to coordinate and manage both health professionals and their relative in terms of getting access to appropriate services and support. This process can be particularly challenging in the presence of a cognitive impairment that often demands effective communication with different agencies. Carers frequently experienced multiple challenges including dealing with the stigma that is characteristic of the dementia experience and the added complexity of negotiating this within a cancer care context.
机译:在本文中,我们审查了非正式卡培人支持在英国内有痴呆和癌症的非正式照顾者的挑战。采访采访了七位非正式护理人员,使用叙述方法来检查其经验的建设。我们的研究结果表明,非正式护理人员如何通过复杂的癌症治疗方法进行途径并支持它们的亲属。癌症诊断通常需要对肿瘤学中心进行多次治疗访问,这可能对护理人员有挑战性。他们发现他们需要协调和管理卫生专业人士以及获得适当的服务和支持的相对。在存在认知障碍的情况下,这一过程可以特别具有挑战性,这些障碍通常需要与不同机构有效的沟通。护理人员经常经历多种挑战,包括处理具有痴呆症经验的特征的耻辱以及在癌症护理环境中谈判这方面的额外复杂性。

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