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Understanding what it means to be socially included for people with a lived experience of mental illness

机译:了解具有精神疾病经历的人们被社会纳入的意义

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Aims: Social inclusion is increasingly understood to have positive and beneficial implications for the mental health outcomes of people with severe mental illness. The concept is plagued by definitional inconsistencies and a lack of consensus regarding what it means to be socially included, in particular for groups most vulnerable to social exclusion, such as people with mental illness. The aim of this study was to obtain a consensus regarding the key contributors to social inclusion from the perspective of people with and without a lived experience of mental illness (consumers of mental health services, carers, and general community members). Methods: Delphi methodology was employed to reach consensus agreement. The Delphi questionnaire was based on a previous review of the literature and consisted of 147 items categorized into 13 domains. It was presented to participants over three rounds. Participants (N = 104) were recruited into three groups (32 consumers, 32 carers of people with a mental illness, and 40 members of the general community - neither consumers nor carers). Retention of participants from Round 1 to Round 3 was 79.8%. Results: Similarities and differences were observed between the groups. A number of items were very strongly endorsed as key contributors to social inclusion, relating to social participation, social supports, housing, neighbourhood, community involvement, employment and education, health and well-being and service utilization. Conclusion: Findings supported previous work, indicating the importance of having a strong sense of connection with others as well as the importance of safe and stable housing, support services and personal motivation and hope. We obtained a well-rounded perspective among groups regarding the key contributors to social inclusion, with a particular relevance to people living with mental illness. This perspective has significant clinical and research utility.
机译:目的:社会包容越来越被理解为对患有严重精神疾病的人的心理健康结果具有积极和有益的影响。该概念受到定义不一致的困扰,也缺乏关于社会的意义,特别是对于最容易受到社会排斥的团体,例如患有精神疾病的人。本研究的目的是从患有和没有居住的精神疾病经验(心理卫生服务,护理人员和普通社区成员)的人们的角度来获得有关社会包容的主要贡献者的协商一致意见。方法:采用Delphi方法达成共识协议。 Delphi问卷是基于对文献之前的审查,由147项分为13个域名。它被呈现给三轮的参与者。参与者(n = 104)被招募到三个群体(32名消费者,32名具有精神疾病的人,以及普通社区的40名成员 - 既不是消费者也不是照顾者)。从第1轮留到第3轮的参与者的保留为79.8%。结果:在组之间观察到的相似性和差异。许多项目被视为社会包容的主要贡献者,与社会参与,社会支持,住房,社区,社区参与,就业和教育,健康和福祉以及服务利用有关。结论:调查结果支持以前的工作,表明具有强烈与他人联系的重要性以及安全稳定的住房,支持服务和个人动机和希望的重要性。我们在有关社会包容的主要贡献者的团体中获得了一系列圆满的观点,与精神疾病的人的特殊相关。这种观点具有显着的临床和研究效用。

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