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首页> 外文期刊>The Hastings Center report >The Relational Potential Standard: Rethinking the Ethical Justification for Life‐Sustaining Treatment for Children with Profound Cognitive Disabilities Rethinking the Ethical Justification for Life‐Sustaining Treatment for Children with Profound Cognitive Disabilities
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The Relational Potential Standard: Rethinking the Ethical Justification for Life‐Sustaining Treatment for Children with Profound Cognitive Disabilities Rethinking the Ethical Justification for Life‐Sustaining Treatment for Children with Profound Cognitive Disabilities

机译：关系潜力标准：重新思考对具有深刻认知残疾儿童的生活持续治疗的道德理由，重新思考对具有深刻认知残疾儿童的生命维持治疗的道德理由

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Abstract In this era of rapidly advancing biomedical technologies, it is not unusual for parents of children with profound cognitive disabilities to ask clinicians to provide invasive life‐sustaining treatments. Parental requests for such interventions pose a moral dilemma to the treating medical team, as there may be a discrepancy between the team's perception of the child's best interest and the apparent rationale underlying a parent's request. This gap highlights the limitation of the best interest standard in cases where, due to a neurodevelopmental disorder or brain injury, the child's capabilities are severely limited and their interests may be difficult to discern. The harm principle is also inadequate for decision‐making in response to these parental requests. To address these limitations, and inspired in part by John Arras's work on the relational potential standard, we propose an integration of care ethics within pediatric decision‐making using a new version of this standard. The potential for children to be in caring and loving relationships with their parents, what we will call “relational potential,” may provide an ethical justification for clinicians to support parental requests for life‐sustaining treatments .
机译：摘要在迅速推进的生物医学技术中，对于具有深刻认知残疾儿童的父母来说，对于临床医生提供侵入性生活维持治疗并不罕见。此类干预措施的父母请求对治疗医疗团队构成道德困境，因为该团队对儿童最佳利益的看法之间可能存在差异，以及父母请求的基本内容的明显理由。这种差距突出了最佳利益标准的限制，因为由于神经发育障碍或脑损伤，儿童的能力严重限制，并且它们的利益可能难以辨别。伤害原则也因这些父母请求而决策不足。为了解决这些限制，并由John Arras对关系潜在标准的工作，我们提出了使用本标准的新版本的小儿决策中的护理道德整合。儿童与父母的关心和充满爱心的潜力，我们将称之为“关系潜力”，可能为临床医生提供道德理由，以支持终身治疗治疗的父母请求。

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