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首页> 外文期刊>The Journal of craniofacial surgery >The Value of a Photobook in Informing Families About the Cosmetic Results of Surgery in Craniosynostosis
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The Value of a Photobook in Informing Families About the Cosmetic Results of Surgery in Craniosynostosis

机译：关于向家庭通知家庭关于颅骨外科手术的美容结果的价值

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This paper outlines the development and evaluation of a photobook resource to support parents' decision making regarding potential craniofacial surgery for their child. The photobook was developed at a UK Craniofacial Unit and consisted of preoperative and postoperative photographs of patients with craniosynostosis. It was intended to act as a visual adjunct to detailed verbal discussion of surgical treatment options. No changes in the uptake rate of surgery were detected following the introduction of the photobook. An evaluation of parents' views of the photobook indicates that families generally welcomed the resource and did not report any adverse responses. Ethical considerations of the use of such a resource cannot be discounted, and careful presentation of such a resource in the context of a specialist team is recommended.
机译：本文概述了对父母对其孩子潜在的颅面外科进行父母决策的开发和评估。 Photobook是在英国颅面积开发的，并由术前和术后患有颅骨患者的患者。 它旨在充当视觉辅助，详细讲话讨论外科治疗方案。 在引入Photobook后检测到手术的摄取率没有变化。 对父母对PhotoBook的看法的评估表明，家庭普遍欢迎资源，并没有报告任何不良反应。 建议使用这种资源的道德考虑因素，并建议在专业团队的上下文中仔细呈现此类资源。

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