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Community-based research in AIDS-service organizations: what helps and what doesn't?

机译：艾滋病服务组织中的社区研究：什么有帮助，什么没有？

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BACKGROUND: Community-based research (CBR) approaches have become commonplace in many North American HIV communities. In many large urban centers, AIDS-service organizations (ASOs) have become active research hubs, advocating for research dollars in community settings. While ASOs have historically integrated local knowledge into their prevention, care and advocacy initiatives, many are now initiating or collaborating in research which addresses emerging issues encountered in practice with clients. OBJECTIVES: To investigate barriers and facilitating factors for ASO engagement in CBR. METHODS: We conducted a survey (n=39) and one-on-one semi-structured telephone interviews (n=25) with executive directors and CBR coordinators from ASOs in Ontario, Canada. The survey queried four major areas of interest (organizational demographics, ASO CBR activities, potential barriers and facilitators for CBR engagement, and what roles stakeholders play in CBR initiatives). The interviews focused on exploring these issues in greater depth as well as understanding barriers and facilitating factors to people living with HIV/AIDS engaging in CBR. RESULTS: ASOs in Ontario are moderately supportive of CBR in their organizations. However, our survey and one-on-one interviews indicate that funding and organizational resources are both important barriers and facilitators to ASO involvement in CBR projects. Attaining access to research ethics boards and concerns that CBR results will not be acted upon also emerged as barriers to CBR, particularly once funds and organizational resources have been attained. Initiatives designed to enhance the skills of research team members emerged as an another important facilitator. CONCLUSION: Increasing emphasis from program funders on more rigorous evaluation and accountability, coupled with pull from increasingly empowered communities demanding much more active roles in setting research agendas, means that CBR is likely here to stay. Attending to barriers and facilitators will help with enhanced ASO engagement in CBR.
机译：背景：基于社区的研究（CBR）方法在许多北美HIV社区中已变得司空见惯。在许多大型城市中心，艾滋病服务组织（ASO）已成为活跃的研究中心，倡导在社区环境中寻求研究经费。尽管ASO历来将本地知识整合到其预防，护理和倡导计划中，但许多组织现在正在发起或合作进行研究，以解决客户在实践中遇到的新问题。目的：调查ASO参与CBR的障碍和促进因素。方法：我们与来自加拿大安大略省ASO的执行董事和CBR协调员进行了一项调查（n = 39）和一对一的半结构化电话访谈（n = 25）。该调查询问了四个主要关注领域（组织人口统计学，ASO CBR活动，参与CBR的潜在障碍和促进者，以及利益相关者在CBR计划中扮演的角色）。访谈的重点是更深入地探讨这些问题，并了解艾滋病毒/艾滋病感染者参与社区康复的障碍和促进因素。结果：安大略省的ASO在其组织中对CBR具有中等程度的支持。但是，我们的调查和一对一的访谈表明，资金和组织资源都是ASO参与社区康复项目的重要障碍和推动者。获得研究伦理委员会的机会以及对不遵循CBR结果的担忧也成为了CBR的障碍，特别是一旦获得资金和组织资源后。旨在提高研究团队成员技能的计划成为另一个重要的推动者。结论：计划资助者越来越强调更加严格的评估和问责制，再加上越来越授权的社区要求在制定研究议程中发挥更加积极作用的作用，这意味着社区康复很可能会留下来。重视障碍和促进者将有助于提高ASO在社区康复中的参与度。

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