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首页> 外文期刊>AIDS care. >In sickness and in health: a qualitative study of how Chinese women with HIV navigate stigma and negotiate disclosure within their marriages/partnerships.
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In sickness and in health: a qualitative study of how Chinese women with HIV navigate stigma and negotiate disclosure within their marriages/partnerships.

机译:在疾病和健康方面:对中国艾滋病病毒感染者如何在其婚姻/伙伴关系中污名化和协商披露的定性研究。

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摘要

In China, there are currently an estimated 180,000 women between 16 and 45 years of age living with HIV. However, we know very little about their lived experiences. Given the spread of the AIDS epidemic in China and the burden it exerts on quality of life, there is an urgent need to understand how HIV affects Chinese women, particularly in the context of their marriages. How do they negotiate the extreme stigma of their illness in making decisions about disclosure and social support, especially in the context of their family life? We recruited 26 Chinese women with HIV in Beijing and Shanghai for in-depth interviews employing a phenomenological approach. We examined the process and outcomes of disclosure within the course of the women's search for social support. Women in HIV-discordant relationships often experienced a termination of their marriage after disclosure, yet others exhibited remarkable resilience, finding new strength through the challenge of their illness. Findings underscore the need for accessible and culturally acceptable interventions for Chinese women with HIV who face considerable stigma in their search for support.
机译:在中国,目前估计有18万名16至45岁的女性感染艾滋病毒。但是,我们对他们的生活经验知之甚少。鉴于艾滋病在中国的蔓延及其给生活质量带来的负担,迫切需要了解艾滋病毒如何影响中国妇女,特别是在婚姻中。他们如何在做出有关披露和社会支持的决定时,特别是在家庭生活中,如何应对疾病的极端污名?我们在北京和上海招募了26名中国艾滋病毒女性,采用现象学方法进行了深入访谈。我们在妇女寻求社会支持的过程中检查了披露的过程和结果。处于艾滋病毒-不和谐关系中的妇女通常在披露后终止婚姻,但其他妇女表现出显着的韧性,通过应对疾病的挑战找到了新的力量。研究结果强调,对于在寻求支持方面面临相当污名的中国艾滋病毒女性,需要采取易于接受且在文化上可接受的干预措施。

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