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首页> 外文期刊>AIDS care. >Does the informal caregiver notice HIV associated mild cognitive impairment in people living with HIV?
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Does the informal caregiver notice HIV associated mild cognitive impairment in people living with HIV?

机译：非正式护理人员是否注意到艾滋病毒感染者中与艾滋病毒有关的轻度认知障碍？

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HIV associated minor neurocognitive disorder (MND) may be difficult to identify as key signs and symptoms (S & S) may be due to other clinical conditions. Using a self-assessment booklet HIV and associated MND we recruited 123 people living with HIV (PLHIV) from three sites: two hospital HIV clinics and a sexual health clinic in Sydney, Australia. Patients may down play S & S. Caregivers may notice subtle changes. By including caregivers, we aimed to find whether the caregivers noticed S & S undetected by the PLHIV. This is a sub-study of a prospective observational multi-site study aimed to validate the usefulness of a patient self-assessment tool (HIV-associated MND booklet). Using the booklet, participants and their caregivers subsequently identified S & S of MND. Sixty-four per cent (79) did not nominate a caregiver to be contacted. Participants from 2 sites 44 (36%) nominated caregivers to be contacted. Twenty-five caregivers identified more than four S & S of MND. S & S reported most by caregivers related to participants being more tired at the end of the day (76%). Participants agreed (77%). Participants also reported that they found it more difficult to remember things such as taking medications or attending medical appointments (67%). The most agreed on symptom was the requirement for increased concentration to get the same things done (Kappa P 0.599 <0.001 and McNemar 0.289). For each question at least one caregiver identified a symptom when the PLHIV did not. Caregivers were more likely than participants to report irritability and communication difficulties. It is important to include caregivers when investigating PLHIV for MND, as caregivers may validate the experience of the patient, and may also be uniquely placed to identify S & S not otherwise identified.
机译：HIV相关的轻度神经认知障碍（MND）可能难以识别，因为关键症状和体征（S＆S）可能是由于其他临床情况引起的。我们使用艾滋病毒和相关MND自我评估手册，从三个地点招募了123名艾滋病毒感染者（PLHIV）：三个医院的HIV诊所和澳大利亚悉尼的性健康诊所。患者可能不喜欢S＆S。护理人员可能会注意到细微的变化。通过包括看护人，我们旨在寻找看护人是否注意到PLHIV未检测到S＆S。这是一项前瞻性观察性多站点研究的子研究，旨在验证患者自我评估工具（与HIV相关的MND手册）的有效性。参加者及其照顾者使用手册，随后确定了MND的S＆S。 64％（79）没有指定要联系的看护人。来自2个地点的参与者（44％（36％）提名的护理人员）将被联系。 25名护理人员确定了MND的4个以上S＆S。 S＆S称，照护者报告的最多与参与者一天结束时更加疲倦有关（76％）。与会者表示同意（77％）。参加者还报告说，他们发现更难记住诸如服药或就医的事情（67％）。症状最一致的是增加注意力以完成同样的事情（Kappa P 0.599 <0.001和McNemar 0.289）。对于每个问题，至少一名护理人员在PLHIV未能识别出症状时就识别出症状。照顾者比参与者更有可能报告烦躁和沟通困难。在对PLHIV进行MND调查时，必须包括护理人员，因为护理人员可能会验证患者的经历，并且可能会被唯一放置以标识其他未标识的S＆S。

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