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The 'moral career' of perinatally HIV-infected children: revisiting Goffman's concept

机译:围生期感染艾滋病毒的儿童的“道德职业”:重新审视戈夫曼的概念

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HIV-infected children usually live in vulnerable situations, experiencing discrimination and stigma commonly felt by other people living with HIV/AIDS. The present study aims to analyse primary socialisation of HIV-infected children and adolescents recruited from a public health service in Rio de Janeiro (Brazil) as a social process that shapes a new generation of stigmatised and vulnerable persons. Research was informed by an interactionist perspective, focusing on key aspects of HIV-infected children and adolescents life histories under the conceptual frame of Erving Goffman's theories regarding "moral careers". Goffman defines the making of a moral career as the process through which a person learns that she/he possesses a particular attribute, which may lead her/him to be discredited by members of the surrounding society. We have identified aspects of life histories of HIV-vertically infected children and adolescents for each aspect of "moral career" as described by Goffman, relating them to as family structure, the experience of living HIV within the family, and the position and family role of a given subject. The patterns of "moral career" proposed by Goffman in 1963 were useful in identifying components of HIV-related stigma among children and adolescents. These include gender and social disadvantages, difficulty in coping with a child with a potentially severe disease, orphanhood, abandonment, adoption and disclosure of one's HIV serostatus. Primary socialisation of HIV-infected children and adolescents is a key piece of the complex HIV/AIDS-labelling process that could be targeted by interventions aiming to decrease stigma and marginalisation. Health care workers and stakeholders should be committed to ensuring education and guaranteeing the legal rights of this specific population, including the continuous provision of quality health care, full access to school and support to full disclosure of HIV diagnosis.
机译:受艾滋病毒感染的儿童通常生活在脆弱的环境中,遭受其他艾滋病毒/艾滋病感染者的普遍歧视和污名。本研究旨在分析从里约热内卢(巴西)的公共卫生服务机构招募的感染了艾滋病毒的儿童和青少年的主要社会活动,这是塑造新一代被污名化和脆弱人群的一种社会过程。互动主义观点为研究提供了依据,重点是在欧文·高夫曼(Erving Goffman)关于“道德职业”的理论的概念框架下,关注感染了HIV的儿童和青少年的生活史的关键方面。高夫曼将道德职业定义为一个过程,通过这个过程,一个人得知自己拥有特定的属性,这可能会使他/他被周围的社会成员抹黑。正如戈夫曼所说,我们已经确定了垂直感染艾滋病毒的儿童和青少年在“道德职业”各个方面的生活史,并将其与家庭结构,家​​庭中艾滋病毒感染者的经历以及职位和家庭角色相关联给定主题的戈夫曼(Goffman)在1963年提出的“道德职业”模式可用于识别儿童和青少年中与HIV有关的污名的组成部分。其中包括性别和社会不利因素,难以应付可能患有严重疾病的儿童,孤儿,遗弃,收养和披露艾滋病毒血清状况。艾滋病毒感染的儿童和青少年的初级社会化是艾滋病毒/艾滋病标签复杂过程的关键部分,可以通过旨在减少污名化和边缘化的干预措施来作为目标。卫生保健工作者和利益相关者应致力于确保这一特定人群的教育并保障其合法权利,包括持续提供优质的卫生保健,充分上学的机会以及支持对HIV诊断的全面披露。

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