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The involvement of people living with HIV/AIDS in community-based organizations: contributions and constraints.

机译:艾滋病毒/艾滋病感染者在社区组织中的参与:贡献和制约因素。

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摘要

An important feature of the social and organizational response to the HIV epidemic has been that many people living with HIV/AIDS have demanded to have a say in the development of policies and the delivery of services. Surprisingly little attention has been paid in the literature to this involvement. This paper is based on a participatory action research project that involved 70 people with HIV/AIDS in 15 focus group discussions. Findings from the study show the complexities of translating organizational commitments to involve people with HIV/AIDS into practice. This paper outlines the organizational contributions of people with HIV, and examines the difficulties and obstacles to their meaningful involvement. The paper concludes with a discussion of the challenges of user empowerment and with recommendations for policy and practice.
机译:对艾滋病毒流行的社会和组织反应的一个重要特征是,许多艾滋病毒/艾滋病感染者要求在政策制定和服务提供方面拥有发言权。出乎意料的是,文献中很少涉及这种参与。本文基于一项参与性行动研究项目,该项目使70名艾滋病毒/艾滋病患者参加了15次焦点小组讨论。研究结果表明,将组织承诺转化为艾滋病毒/艾滋病感染者的实践很复杂。本文概述了艾滋病毒感染者的组织贡献,并考察了他们有意义地参与其中的困难和障碍。本文最后讨论了授权用户的挑战,并提出了有关政策和实践的建议。

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