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A commentary on methodological issues in stroke caregiver research: lessons learned from three RESCUE intervention studies

机译：中风护理人员研究中的方法论评论：从三个救援干预研究中汲取的经验教训

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摘要

Stroke caregivers represent a distinct population and require unique considerations when conducting intervention research. Unfortunately, there are few published recommendations for conducting intervention trials with stroke caregivers. Thus, the goal of this paper is to provide foundational guidance for stroke caregiving researchers. We describe lessons learned from three trials of the RESCUE intervention to illustrate methodological issues in stroke caregiver research. We identify challenges encountered while conducting a clinical demonstration project, pilot study, and multi-site randomized controlled trial of a problem-solving and skills-building stroke caregiver intervention. We use our research experiences to exemplify or enhance understanding of each issue and describe the strategies we employed to overcome these obstacles. We present issues related to and recommendations for study design, theoretical frameworks, eligibility criteria, recruitment and retention, human subjects protection, intervention design, treatment fidelity, outcome measures, and qualitative methods. Identifying approaches to circumvent methodological challenges can help advance research on and implementation of stroke caregiver programs.
机译：行程护理人员代表着一种不同的人口，在进行干预研究时需要唯一的考虑因素。不幸的是，有很少有关于用中风护理人员进行干预试验的推荐建议。因此，本文的目标是为中风护理研究人员提供基础指导。我们描述了从救援干预的三次试验中汲取的经验教训，以说明中风照顾者研究中的方法论问题。我们确定进行临床示范项目，试点研究和多场随机对照试验的遇到挑战，解决问题解决和技能建设中风护理人员干预。我们使用我们的研究经验来举例说明或加强对每个问题的理解，并描述我们雇用这些障碍的战略。我们提出了与学习设计，理论框架，资格标准，招聘和保留，人体受试者保护，干预设计，治疗保真度，结果措施和定性方法进行相关的问题。确定规避方法挑战的方法可以帮助推进卒中照顾者计划的研究和实施。

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