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Medical care of adults with congenital heart diseases Present and future

机译：具有先天性心脏病的成年人的医疗和未来

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摘要

Congenital heart diseases (CHD) are the most common types of congenital organ defects. Thanks to medical progress in congenital cardiology and heart surgery, most children with CHD reach adulthood. Despite primarily successful treatment residual and subsequent conditions as well as (non)cardiac comorbidities can influence the chronic course of the disease and lead to a higher morbidity and mortality. Adults with congenital heart disease (ACHD) in Germany are not tied to the healthcare structure despite the great need for aftercare. According to the results of the medical care of ACHD (MC-ACHD) study, ACHD centers and specialists in Germany are insufficiently perceived despite increased complication rates and the great need for specialist guidance. General practitioners and patients are not adequately informed about existing ACHD facilities. A better awareness of the ACHD problem should be created at the level of primary medical supply in order to optimize care and to reduce morbidity and mortality. Improved future-oriented patient care includes lifelong regular follow-up and the possibility of interdisciplinary, integrated medical care of CHD.
机译：先天性心脏病（CHD）是最常见的先天性器官缺陷类型。由于先天性心脏病学和心脏手术中的医学进展，大多数CHD到达成年期。尽管主要是成功的治疗残留和随后的条件以及（非）心脏疗法可以影响疾病的慢性过程，导致发病率和死亡率较高。尽管善良的需要，但在德国的先天性心脏病（ACHD）的成年人并没有与医疗保健结构相关联。根据ACHD的医疗结果（MC-ACHD）的研究结果，尽管增加了复杂性率和专业指导，但德国的ACHD中心和专家都不足以感知。一般从业者和患者没有充分了解现有的ACHD设施。应在主要医疗供应水平上创造对ACHD问题的更好意识，以优化护理并降低发病率和死亡率。改善面向未来的患者护理包括终身定期跟进和跨学科的可能性，CHD的综合医疗。

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  • 来源
    《Herz》 |2019年第6期|共20页
  • 作者

    Neidenbach R.; Achenbach S.; Andonian C.; Beckmann J.; Biber S.; Dittrich S.; Ewert P.; Freilinger S.; Huntgeburth M.; Nagdyman N.; Oberhoffer R.; Pieper L.; von Kodolitsch Y.; Weyand M.; Bauer U. M. M.; Kaemmerer H.;

  • 作者单位

    Deutsch Herzzentrum Munich Klin Angeborene Herzfehler &

    Kinderkardiol Lazarettstr 36 D-80636;

    Univ Klinikum Erlangen Med Klin 2 Kardiol &

    Angiol Erlangen Germany;

    Tech Univ Munich Lehrstuhl Sportpsychol Fak Sport &

    Gesundheitswissensch Munich Germany;

    Tech Univ Munich Lehrstuhl Sportpsychol Fak Sport &

    Gesundheitswissensch Munich Germany;

    Tech Univ Munich Lehrstuhl Sportpsychol Fak Sport &

    Gesundheitswissensch Munich Germany;

    Univ Klinikum Erlangen Med Klin 2 Kardiol &

    Angiol Erlangen Germany;

    Deutsch Herzzentrum Munich Klin Angeborene Herzfehler &

    Kinderkardiol Lazarettstr 36 D-80636;

    Deutsch Herzzentrum Munich Klin Angeborene Herzfehler &

    Kinderkardiol Lazarettstr 36 D-80636;

    Univ Klinikum Koln Klin Innere Med Zentrum Erwachsene Angeborenen Herzfehlern EMAH Herzzentrum;

    Deutsch Herzzentrum Munich Klin Angeborene Herzfehler &

    Kinderkardiol Lazarettstr 36 D-80636;

    Tech Univ Munich Lehrstuhl Pravent Padiatrie Munich Germany;

    Tech Univ Dresden Behav Epidemiol Dresden Germany;

    Univ Klinikum Hamburg Eppendorf Klin &

    Poliklin Ailgemeine &

    Intervent Kardiol Univ Herzzentrum;

    Univ Klinikum Erlangen Med Klin 2 Kardiol &

    Angiol Erlangen Germany;

    Natl Register Angeborene Herzfehler Berlin Germany;

    Deutsch Herzzentrum Munich Klin Angeborene Herzfehler &

    Kinderkardiol Lazarettstr 36 D-80636;

  • 收录信息
  • 原文格式 PDF
  • 正文语种 ger
  • 中图分类 心脏、血管（循环系）疾病;
  • 关键词

    Congenital heart defects; Cardiology; ACHD; Comorbidities; Prevention;

    机译：先天性心脏缺陷;心脏病学;ACHD;合并症;预防;

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