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Funding and Forums for ELSI Research: Who (or What) Is Setting the Agenda?

机译：ELSI研究的资金和论坛：确定议程的是谁（或什么）？

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Background: Discussion of the influence of money on bioethics research seems particularly salient in the context of research on the ethical, legal, and social implications (ELSI) of human genomics, as this research may be financially supported by the ELSI Research ProgramEmpirical evidence regarding the funding of ELSI research and where such research is disseminated, in relation to the specific topics of the research and methods used, can help to further discussions regarding the appropriate influence of specific institutions and institutional contexts on ELSI and other bioethics research agendasMethods: We reviewed 642 ELSI publications (appearing between 2003 and 2008) for reported sources of funding, forum for dissemination, empirical and nonempirical methods, and topics of investigationResults: Most ELSI research is independent of direct grant-based funding sources; 66% reported no such sources of fundingThe National Human Genome Research Institute (NHGRI) is the most dominant source of funding; 16% of publications acknowledged at least one source of NHGRI grant fundingFunding is acknowledged more frequently in empirical than nonempirical publications and more frequently in publications in public health journals than in any other ELSI research dissemination forumsDominant research topics vary by publication forum and by reported fundingConclusions: ELSI research is surprisingly independent of direct grant-based funding, yet correlations are apparent between this type of funding and publication placement, topics addressed, and methods used, implying a not insignificant influence on ELSI research agenda settingHowever, given the relatively low percentage of publications acknowledging external grant-based funding, as well as other significant correlations between publication placement and topics addressed, additional institutional contexts, perhaps related to professional advancement or valuation, may shape research agendas in ways that potentially exceed the direct influences of grant-based funding in this areaIn some cases, grant-based funding may actually counter other potentially problematic institutional influences.
机译：背景：在关于人类基因组学的伦理，法律和社会影响（ELSI）的研究背景下，讨论金钱对生物伦理​​学研究的影响显得尤为重要，因为该研究可能得到ELSI研究计划的财务支持。与研究的特定主题和所用方法有关的ELSI研究的资金以及此类研究的传播地点，可以帮助进一步讨论特定机构和制度环境对ELSI和其他生物伦理学研究议程的适当影响方法：我们审查了642 ELSI出版物（2003年至2008年间出现），用于报告资金来源，传播论坛，经验和非经验方法以及调查主题。结果：大多数ELSI研究独立于直接基于赠款的资金来源; 66％的受访者表示没有此类资金来源国家人类基因组研究所（NHGRI）是最主要的资金来源; 16％的出版物承认至少一个NHGRI赠款来源经验性出版物比非经验性出版物更被认可，公共卫生期刊中的出版物也比任何其他ELSI研究传播论坛更被认可主要研究主题因出版物论坛和报告的资助而异。 ELSI研究出乎意料地独立于直接基于赠款的资金，但是这种类型的资金与出版物的位置，所解决的主题和使用的方法之间存在明显的相关性，这意味着对ELSI研究议程设置的影响并不微不足道。承认基于外部赠款的资金，以及出版物的刊登位置和所讨论主题之间的其他重大关联，其他可能与专业进阶或估值有关的制度背景，可能会以超出其直接影响的方式影响研究议程。在这方面，基于赠款的资金在某些情况下，基于赠款的资金实际上可以应对其他潜在的问题性制度影响。

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