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首页> 外文期刊>Disability and rehabilitation. >When I do, I become someone: experiences of occupational performance in young adults with cerebral palsy
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When I do, I become someone: experiences of occupational performance in young adults with cerebral palsy

机译：当我这样做时，我成为某人：脑瘫的年轻成年人职业表现的经历

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Purpose: Persons with cerebral palsy, even If they have relatively good motor functions, have a lower level of Independence and participation In everyday activities than persons of the same age without disabilities. However, there are few descriptions of how persons with cerebral palsy themselves perceive their performance of activities in everyday life. The aim of this study was to describe the perceptions that young adults with cerebral palsy have of occupational performance in everyday life. Methods: This qualitative interview study includes 10 participants with cerebral palsy classified with Manual Ability Classification System level I-II, aged 19-30 years. The data were analyzed using a phenom-enographic approach. Results: The interviews resulted in five categories: "Important to do"; "Demanding but can be facilitated"; "Excludes or includes"; "Diminishes me or makes me grow"; and "Comes at a price". Conclusions: The young adults with cerebral palsy consider that, despite life being so demanding, it is extremely important to perform activities themselves and to feel included, as this enables personal growth. Hence, it is necessary to advance intervention methods based on personally important activities to enable individuals with cerebral palsy to find their own way to perform activities. Further research is needed to increase opportunities for individuals with cerebral palsy to perform everyday activities without too much fatigue and struggle.
机译：目的：具有脑瘫的人，即使他们有相对良好的运动功能，也有比没有残疾年龄相同年龄的人的独立和参与度。然而，很少有脑瘫人如何感知他们在日常生活中的活动的表现。本研究的目的是描述日常生活中脑瘫的年轻成年人在日常生活中具有职业表现的看法。方法：这种定性访谈研究包括10名脑瘫的参与者，归类于19 - 30年龄的手动能力分类系统等级I-II。使用一种现象制造方法分析数据。结果：面试导致五类：“重要的是”; “苛刻但可以促进”; “不包括或包括”; “减少我或让我成长”;并“以价格出现”。结论：具有脑瘫的年轻成年人认为，尽管生活如此要求，但这种活动本身和感觉非常重要，因为这使得个人增长。因此，有必要基于个人重要的活动推进干预方法，以使个人能够与脑瘫有关，以找到自己的方式进行活动。需要进一步的研究来增加具有脑瘫的个体的机会，以便在没有过于疲劳和斗争的情况下进行日常活动。

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