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首页> 外文期刊>Alzheimer’s & dementia: the journal of the Alzheimer’s Association >Current knowledge and future directions about the disclosure of dementia: A systematic review of the first decade of the 21st century
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Current knowledge and future directions about the disclosure of dementia: A systematic review of the first decade of the 21st century

机译：有关痴呆症披露的当前知识和未来方向：对21世纪前十年的系统回顾

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Background: The disclosure of Alzheimer's disease presents a great challenge because it entails emotionally charged communication about a life-threatening, incurable, and stigmatized disease. Although a broad consensus has evolved regarding the potential benefits of early disclosure of the diagnosis, little is known about how these recommendations are actually implemented, and there is limited published research about the process issues of the disclosure. Purpose: (1) To systematically obtain and evaluate the relevant literature on disclosing a diagnosis of dementia, with special attention to process issues, and (2) to summarize current research findings and draw conclusions for future research and clinical care in this area. Methods: A systematic review of the literature on disclosure of dementia during the first decade of the 21st century was conducted. Results: From 265 articles retrieved, 47 were included in the review. Although the studies published in the first years of the decade were concerned with assessing attitudes and preferences of those involved in the process of disclosing the diagnosis, those of the last years have focused more on communication and other process issues. Conclusions: A conceptual development over time in the area is observed in which in the first years, thought processes begin as an ethical debate among clinicians and researchers about the topic of "truth telling" and dementia, continue as a search of the opinions of those involved in the process of disclosure about truth telling, and evolve (observed more recently) into an examination of how this truth telling is delivered.
机译：背景：阿尔茨海默氏病的披露面临着巨大的挑战，因为它涉及到威胁生命，无法治愈和蒙受耻辱的疾病的情感交流。尽管关于早期披露诊断的潜在益处已达成广泛共识，但对于这些建议的实际实施方式知之甚少，有关披露的过程问题的研究也很少。目的：（1）系统地获取和评估有关披露痴呆症诊断的相关文献，并特别关注过程问题;（2）总结当前的研究结果，并为该领域的未来研究和临床护理得出结论。方法：对21世纪前十年痴呆症披露文献进行了系统回顾。结果：从检索到的265篇文章中，有47篇被纳入评论。尽管在该十年的头几年发表的研究关注评估诊断过程中涉及的人员的态度和偏好，但最近几年的研究更多地集中在沟通和其他过程问题上。结论：该地区随着时间的推移出现了概念上的发展，在最初的几年中，思维过程开始于临床医生和研究人员关于“讲真话”和痴呆症的伦理辩论，并继续作为对这些观点的搜寻。参与披露真相的过程，并发展（最近观察到）对这种真相的传递方式的检验。

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