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首页> 外文期刊>Journal of drugs in dermatology: JDD >International Dermatology Outcome Measures (IDEOM) Group 2016 New York Meeting: Meeting Summary and Data from the Psoriasis Working Group
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International Dermatology Outcome Measures (IDEOM) Group 2016 New York Meeting: Meeting Summary and Data from the Psoriasis Working Group

机译：国际皮肤科结果措施（IDEOM）集团2016年纽约会议：从牛皮癣工作组会议摘要和数据

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摘要

The International Dermatology Outcome Measures (IDEOM) Group was established to develop validated and standardized patient-centered outcome measures in dermatology that meet the needs of stakeholders and can be used in clinical practice as well as clinical research. At this meeting, we aimed to define the final core domain set to be assessed in psoriasis clinical research and to identify which of the current psoriasis assessment instruments appropriately address those domains. Specifically, we sought to ascertain stakeholder input on domain match and feasibility of multiple psoriasis instruments. We presented 19 physician-reported and 23 patient-reported outcome measures at the meeting. Stakeholders anonymously voted on the validity and feasibilibity of each instrument. Validity was rated as: green (good), amber (fair), red (poor), and white (not enough information). Feasibility was rated as: green (feasible), amber (concerns about some aspects of feasibility), red (not feasible), and white (not enough information). Eighteen physician-reported and 20 patient-reported instruments received a favorable green or amber rating for validity from the majority of voters. Seventeen physician reported and 19 patient-reported instruments received a green or amber rating for feasilibty from the majority of voters. A significant proportion of the psoriasis instruments received a good or fair vote for measuring their intended psoriasis domains in a feasible manner. We will continue to refine our voting methodology and incorporate patient input into our process of defining psoriasis domains and developing validated instruments.
机译：建立了国际皮肤病学结果措施（IDEOM）集团，以制定符合利益攸关方需求的皮肤科的验证和标准化的患者中心结果措施，并可用于临床实践以及临床研究。在本次会议上，我们旨在定义在牛皮癣临床研究中进行评估的最终核心域集，并确定当前的牛皮癣评估文书适当地解决这些域。具体而言，我们试图确定有关域匹配的利益相关者输入和多个牛皮癣仪器的可行性。我们在会议上介绍了19名医生报告的和23例患者报告的结果措施。利益攸关方匿名投票对每个仪器的有效性和义率进行投票。有效性被评为：绿色（好），琥珀（公平），红色（差）和白色（没有足够的信息）。可行性被评为：绿色（可行），琥珀色（关于可行性某些方面的担忧），红色（不可行）和白色（不足的信息）。据大多数选民从大多数选民获得有利的绿色或琥珀色的乐器，据称，有良好的绿色或琥珀评级，有效的绿色或琥珀评级。 17名医生报告和19例报告的仪器从大多数选民到大多数选民获得了Fasilibty的绿色或琥珀色评级。牛皮癣仪器的大量比例接受了以可行的方式测量其预期的牛皮癣域的良好或公平投票。我们将继续优化我们的投票方法，并将患者输入纳入我们定义牛皮癣域的过程和开发验证的乐器。

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