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首页> 外文期刊>Journal of genetic counseling >Involvement and Influence of Healthcare Providers, Family Members, and Other Mutation Carriers in the Cancer Risk Management Decision-Making Process of BRCA1 and BRCA2 Mutation Carriers
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Involvement and Influence of Healthcare Providers, Family Members, and Other Mutation Carriers in the Cancer Risk Management Decision-Making Process of BRCA1 and BRCA2 Mutation Carriers

机译：医疗保健提供者，家庭成员和其他突变载体在癌症风险管理决策过程中的参与和影响<重点类型=“斜体”> BRCA1 和<重点类型=“斜体”> BRCA2 突变载体

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Deciding between increased cancer screening or prophylactic surgery and the timing of such procedures can be a difficult and complex process for women with BRCA mutations. There are gaps in our understanding of involvement of others in the decision-making process for women with BRCA mutations. This study evaluated the management decision-making process of women with BRCA mutations, focusing on the involvement of others. Grounded theory was used to analyze and code risk management decision-making information from interviews with 20 BRCA mutation carriers. Unaffected at-risk participants with a BRCA mutation, those under age 40, and those with no children described having a difficult time making risk management decisions. Physicians were an integral part of the decision-making process by providing decisional support and management recommendations. Family members and other mutation carriers filled similar yet distinct roles by providing experiential information as well as decisional and emotional support for carriers. Participants described genetic counselors as short-term providers of risk information and management recommendations. The study findings suggest that unaffected at-risk women, women under 40, and those who do not have children may benefit from additional support and information during the decision-making process. Genetic counselors are well trained to help women through this process and connect them with resources, and may be under-utilized in long-term follow-up for women with a BRCA mutation.
机译：决定增加癌症筛查或预防性手术，并且这些程序的时间可能是BRCA突变妇女的困难和复杂的方法。我们理解他人在BRCA突变的妇女的决策过程中的参与情况下存在差距。本研究评估了BRCA突变的妇女的管理决策过程，重点是其他人的参与。接地理论用于分析和代码有20个BRCA突变载体的访谈中的风险管理决策信息。没有BRCA突变的风险参与者，40岁以下的人和没有孩子的人，那些没有困难时期的风险管理决策。通过提供决策和管理层建议，医生是决策过程的一个组成部分。家庭成员和其他突变运营商通过提供体验信息以及对运营商的决定性和情感支持，填补了类似但不同的作用。参与者将遗传辅导员描述为风险信息和管理建议的短期提供者。研究结果表明，不受影响的妇女，40岁以下的妇女和没有孩子的人可能会受益于决策过程中的额外支持和信息。遗传辅导员训练有素，以帮助妇女通过这一过程，并将其与资源联系起来，并且可以为BRCA突变的女性的长期随访而被利用。

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