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首页> 外文期刊>Journal of health care for the poor and underserved >Discordant Patient and Clinician Perspectives on the Potential Value of Genetic Services in Safety-Net Clinics
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Discordant Patient and Clinician Perspectives on the Potential Value of Genetic Services in Safety-Net Clinics

机译：不和谐的患者和临床医生对安全网诊所遗传服务潜在价值的观点

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Purpose. As new genetic services become available, their implementation in safety-net settings must be studied. Methods. We interviewed stakeholders (patients and primary care clinicians) from federally qualified health centers to discuss the utility, acceptability, and priority of new genetic services. We presented scenarios tailored for each audience describing carrier testing, diagnostic testing for a developmental delay, and hereditary cancer syndrome testing. We summarized transcripts using the framework method and compared patient and clinician perspectives. Results. Clinicians questioned the relevance and priority of genetic services. Hereditary cancer testing was perceived most favorably by clinicians, who focused on actionability, cost, and access to downstream care. Patients stated that access to genetic services was important and that there should be parity across safety-net and higher-resourced settings. Conclusions. Genetic services with clear clinical impact are more acceptable to clinicians in safety-net clinics. Clinicians may be underestimating patients' interest in expanded genetic services.
机译：目的。随着新的遗传服务可用，必须研究他们在安全网设置中的实施。方法。我们采访了来自联邦合格的医疗中心的利益相关者（患者和初级保健临床医生），讨论新遗传服务的效用，可接受性和优先权。我们提出了针对各种观众定制的场景，用于描述载波测试，诊断测试对发育延迟和遗传性癌症综合征检测。我们使用框架方法和比较患者和临床医生的观点来汇总转录物。结果。临床医生质疑遗传服务的相关性和优先权。临床医生最有利地感受到遗传性癌症测试，他们专注于可行性，成本和访问下游护理。患者表示，进入遗传服务很重要，安全栏和较高资源的环境中应该有平价。结论。在安全净诊所的临床医生上具有明确的临床影响的遗传服务。临床医生可能会低估患者对扩展遗传服务的兴趣。

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