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首页> 外文期刊>Journal of hospice and palliative nursing: JHPN : the official journal of the Hospice and Palliative Nurses Association >A Focus Group Study of Provider and Patient Perceptions of Communicating Advanced Care Planning Wishes Using Digital Storytelling
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A Focus Group Study of Provider and Patient Perceptions of Communicating Advanced Care Planning Wishes Using Digital Storytelling

机译：使用数字讲故事，对提供者的焦点小组研究以及沟通先进护理计划愿望的患者

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摘要

Advanced care planning (ACP) and end-of-life discussions are especially difficult among persons living with human immunodeficiency virus (HIV)/acquired immunodeficiency syndrome (AIDS) as a result of patients' lack of trust in family and providers, HIV-related stigma, misunderstood spirituality concerns, social isolation, and other factors. Previous research has demonstrated that relatively few persons living with HIV/AIDS engage in ACP, yet developing culturally sensitive methods of ACP is imperative. One such method is digital storytelling, a video narrative that can be used to share ideas or aspects of a life story. The aim of this study was to examine perspectives from providers and persons living with HIV/AIDS about the acceptability, benefits, and technological challenges of and barriers to using digital storytelling for ACP. A qualitative descriptive design was employed using focus groups of 21 participants in South Central Appalachia. Transcribed data were analyzed using qualitative content analysis. Findings revealed patient and provider ideas about ACP, factors related to digital story acceptability, stigma against persons living with HIV/AIDS, and concern for the legality of ACPs expressed in digital story format. Future research should focus on the process of creating digital stories as an intervention to improve ACP in this unique aggregate.
机译：在患者在患者在家庭和提供者缺乏信任的情况下，在人类免疫缺陷病毒（HIV）/获得的免疫缺陷综合征（AIDS）的人中，高级护理计划（ACP）和寿命终止讨论特别困难耻辱，误解的灵性问题，社会孤立和其他因素。以前的研究表明，艾滋病毒/艾滋病的患者相对较少地参与ACP，但在开发的ACP的文化敏感方法是必要的。一种这样的方法是数字讲故事，一个可用于分享生命故事的想法或方面的视频叙述。本研究的目的是审查与艾滋病毒/艾滋病生活的提供者和人员的观点，了解使用数字讲故障为ACP的可接受性，益处和技术挑战和障碍。使用South Central Appalachia的21名参与者的焦点小组使用定性描述性设计。使用定性内容分析分析转录数据。调查结果显示了关于ACP的患者和提供者的想法，与数字故事可接受性有关的因素，与艾滋病毒/艾滋病的人的耻辱，以及对数字故事格式表达的ACP的合法性。未来的研究应侧重于创建数字故事作为改进这一独特汇总中ACP的干预的过程。

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