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首页> 外文期刊>Annals of behavioral medicine : >Sources of uncertainty and their association with medical decision making: Exploring mechanisms in fanconi anemia
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Sources of uncertainty and their association with medical decision making: Exploring mechanisms in fanconi anemia

机译：不确定性来源及其与医疗决策的关联：探索范可尼贫血的机制

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Background: Effects of different sources of medical uncertainty on people's health-related cognitions, emotions, and decision making have yet to be systematically examined. Purpose: The aim of this study is to examine how uncertainties arising from different sources are associated with decision making regarding stem cell transplantation in Fanconi anemia, a rare, inherited bone marrow failure syndrome that typically presents during childhood. Methods: Data were collected through a cross-sectional survey of 178 parents of 126 Fanconi anemia patients. Results: Two distinct sources of uncertainty were associated with decision outcomes: probability was associated with a lower likelihood of choosing stem cell transplantation, and ambiguity due to conflicting expert opinions was associated with greater decision-making difficulty. Concern about transplantation may mediate these associations. Conclusions: Different sources of uncertainty have different effects on Fanconi anemia treatment decisions, which may be mediated by parents' emotional reactions. Further research is needed to elucidate these effects and help Fanconi anemia families cope with uncertainty.
机译：背景：医学不确定性的不同来源对人们与健康相关的认知，情绪和决策的影响尚待系统地研究。目的：本研究的目的是探讨在范科尼贫血（这是一种罕见的遗传性骨髓衰竭综合征，通常在儿童时期出现）中干细胞移植的决策中，不同来源引起的不确定性如何相关。方法：通过横断面调查收集了126名Fanconi贫血患者的178名父母的数据。结果：两种不同的不确定性来源与决策结果相关：概率与选择干细胞移植的可能性较低相关，而由于专家意见冲突而产生的歧义则与更大的决策难度相关。对移植的担忧可能会介导这些关联。结论：不确定性的不同来源对Fanconi贫血治疗决策的影响不同，这可能是由父母的情绪反应所介导的。需要进一步的研究来阐明这些影响，并帮助范科尼贫血家庭应对不确定性。

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