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End-of-Life Caregiver Social Support Activation: The Roles of Hospice Clinicians and Professionals

机译:生活结束护理人员社会支持激活:临终关怀临床医生和专业人士的角色

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摘要

Caregivers of those with life-limiting illness face many complicated tasks, including providing direct patient care, communicating with professionals, and managing the logistical demands of daily activities. To assist with caregiving responsibilities, caregivers require social support from social network members at all points in the illness process. This study analyzes themes from interviews with 61 caregivers of patients enrolled in hospice services to identify the types of support caregivers mobilize from new social network members for social support during the end-of-life care process. Themes indicate that caregivers receive accessible, immediate, caregiver-centered emotional support from hospice health care professionals, and situationally tailored, understandable informational support from other types of professionals. In addition, caregivers received overlapping emotional and informational support from hospice health care professionals. Findings enhance the understanding of how caregivers receive tailored emotional and informational support.
机译:生活受限疾病患者的护理人员面临着许多复杂的任务,包括提供直接的患者护理、与专业人士沟通以及管理日常活动的后勤需求。为了协助履行护理职责,护理人员在疾病过程中的各个阶段都需要社会网络成员的社会支持。本研究分析了对61名参加临终关怀服务的患者照料者的访谈主题,以确定在临终关怀过程中,照料者从新的社会网络成员中动员的社会支持类型。主题表明,护理人员从临终关怀医疗保健专业人员那里获得可获得的、即时的、以护理人员为中心的情感支持,以及从其他类型的专业人员那里获得的情境定制的、可理解的信息支持。此外,护理人员从临终关怀医疗专业人员那里获得了重叠的情感和信息支持。研究结果有助于理解护理人员如何获得量身定制的情感和信息支持。

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